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101 0 $aeng
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181   $ctxt
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183   $acr
200 10$aGenetic privacy $ean evaluation of the ethical and legal landscape /$fedited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho, National University of Singapore, Singapore
210   $aLondon $cImperial College Press$d2013
210  1$aLondon :$cImperial College Press,$d[2013]
210  4$d?2013
215   $a1 online resource (xiii, 397 pages)
225 0 $aGale eBooks
300   $aDescription based upon print version of record.
311   $a1-78326-305-9 
311   $a1-299-77085-1 
320   $aIncludes bibliographical references and index.
327   $aThe notion of genetic privacy / Calvin W.L. Ho and Terry S.H. Kaan -- Can data protection secure personal privacy? / Onora O'Neill -- Navigating the privacy complex of self, other, and relationality / Calvin W.L. Ho -- Privacy and biomedical research : a role-based approach / Anh Tuan Nuyen -- Socio-political discourses on genetic privacy in Japan / Kenji Matsui -- Genetic privacy : a challenge to genetic testing in China / Chunshui Wang -- Don't ask, don't tell : exploring the limits of genetic privacy in Singapore / Terry S.H. Kaan -- Privacy, rights, and biomedical data collections / Benjamin Capps -- Individual right vs. public interest : the role of the Islamic religious council of Singapore in bioethics consultation on genetic privacy / Nazirudin M. Nasir -- What - if anything - is special about "genetic privacy"? / Jacqueline J.L. Chin and Alastair V. Campbell -- Genetic privacy in the United States : genetic exceptionalism, GINA, and the future of genetic testing / Thomas H. Murray and Ross S. White -- The regulatory framework for protection of genetic privacy in Australia / Margaret Otlowski and Dianne Nicol -- Privacy matters in nicotine addiction / Yvette van der Eijk -- Human genomics and privacy / Oi Lian Kon.
330   $aPrivacy is an unwieldy concept that has eluded an essentialised definition despite its centrality and importance in the body of bioethics. The compilation presented in this volume represents continuing discussions on the theme of privacy in the context of genetic information. It is intended to present a wide range of expert opinion in which the notion of privacy is examined from many perspectives, in different contexts and imperatives, and in different societies, with the hope of advancing an understanding of privacy through the examination and critique of some of its evolving component concep
606   $aGenetic disorders
606   $aMedical ethics
615  0$aGenetic disorders.
615  0$aMedical ethics.
676   $a174.2/96042
702   $aKaan$b Terry
702   $aHo$b W. Calvin
801  0$bMiFhGG
801  1$bMiFhGG
906   $aBOOK
912   $a9910814425403321
996   $aGenetic privacy$94099491
997   $aUNINA