LEADER 04434nam 2200625 450 001 9910814335903321 005 20230808213206.0 010 $a90-04-31189-0 024 7 $a10.1163/9789004311893 035 $a(CKB)3710000000553935 035 $a(EBL)4355997 035 $a(SSID)ssj0001637635 035 $a(PQKBManifestationID)16396082 035 $a(PQKBTitleCode)TC0001637635 035 $a(PQKBWorkID)14956435 035 $a(PQKB)10876980 035 $a(MiAaPQ)EBC4355997 035 $a(OCoLC)928615077 035 $a(nllekb)BRILL9789004311893 035 $a(EXLCZ)993710000000553935 100 $a20160213h20162016 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 00$aGenetic transparency? $eethical and social implications of next generation human genomics and genetic medicine /$fedited by Malte Dreyer, Jeanette Erdmann, Christoph Rehmann-Sutter 210 1$aLeiden, Netherlands ;$aBoston, Massachusetts :$cBrill-Rodopi,$d2016. 210 4$d©2016 215 $a1 online resource (292 p.) 225 1 $aLife Sciences, Ethics and Democracy,$x2211-4416 ;$vVolume 2 300 $aIncludes index. 311 $a90-04-30668-4 320 $aIncludes bibliographical references and index. 327 $tPreliminary Material /$rMalte Dreyer , Jeanette Erdmann and Christoph Rehmann-Sutter --$tIntroduction /$rChristoph Rehmann-Sutter , Malte Dreyer and Jeanette Erdmann --$tThe Idea of ?Genes? and Their ?Transparency? /$rChristoph Rehmann-Sutter and Malte Dreyer --$tMaking Genomes Visible /$rBenedikt Reiz , Jeanette Erdmann and Christoph Rehmann-Sutter --$tWho is the Subject of Genetic Responsibility? /$rAngeliki Kerasiou , Cathy Herbrand and Malte Dreyer --$tPersonal Genomics: Transparent to Whom? /$rTeresa Finlay , Shannon Gibson , Lene Koch and Sara Toccheti --$tGenetic Transparency versus Genetic Privacy ? The Complex Ethics of Genetic Testing in Humans /$rKirsten Brukamp , Gabrielle M. Christenhusz and Caroline Fündling --$tUnderstanding the Complexity of Regulation in an Evolving Health Technology Landscape /$rAndrei Famenka , Shannon Gibson and Fruzsina Molnár-Gábor --$tGenetic Transparency ? Transparency of Communication /$rGabrielle M. Christenhusz , Lorraine Cowley , Tim Ohnhäuser and Vasilija Rolfes --$tAbout the Authors /$rMalte Dreyer , Jeanette Erdmann and Christoph Rehmann-Sutter --$tIndex /$rMalte Dreyer , Jeanette Erdmann and Christoph Rehmann-Sutter. 330 $aGenetic Transparency? tackles the question of who has, or should have access to personal genomic information. Genomic science is revolutionary in how it changes the way we live, individually and together, and how it changes the shape of society. If this is so, then ? the authors of this volume claim ? the rules that regulate genetic transparency should be debated carefully, openly and critically. It is important to see that the social and cultural meanings of DNA and genetic sequences are much richer than can be accounted for by purely biomedical knowledge. In this book, an international group of leading genomics experts and scholars from the humanities and social sciences discuss how the new accessibility of genomic information affects interpersonal relationships, our self-understandings, ethics, law, and healthcare systems. Contributors are: Kirsten Brukamp, Gabrielle Christenhusz, Lorraine Cowley, Malte Dreyer, Jeanette Erdmann, Andrei Famenka, Teresa Finlay, Caroline Fündling, Shannon Gibson, Cathy Herbrand, Angeliki Kerasidou, Lene Koch, Fruzsina Molnár-Gábor, Tim Ohnhäuser, Christoph Rehmann-Sutter, Benedikt Reiz, Vasilja Rolfes, Sara Tocchetti 410 0$aLife sciences, ethics and democracy ;$vVolume 2. 606 $aGenomics$xMoral and ethical aspects 606 $aMedical genetics$xMoral and ethical aspects 606 $aHuman genetics 615 0$aGenomics$xMoral and ethical aspects. 615 0$aMedical genetics$xMoral and ethical aspects 615 0$aHuman genetics. 676 $a573.21 702 $aDreyer$b Malte 702 $aErdmann$b Jeanette 702 $aRehmann-Sutter$b Christoph 712 02$aGermany.$bBundesministerium fu?r Bildung und Forschung. 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910814335903321 996 $aGenetic transparency$94003089 997 $aUNINA