LEADER 03461nam 22006732 450 001 9910814057403321 005 20151005020623.0 010 $a1-107-23446-8 010 $a1-139-61012-0 010 $a1-139-61198-4 010 $a1-139-62128-9 010 $a1-283-94316-6 010 $a1-139-62500-4 010 $a1-139-60856-8 010 $a1-139-61570-X 010 $a1-139-05179-2 035 $a(CKB)2670000000326610 035 $a(EBL)1099844 035 $a(OCoLC)823724306 035 $a(SSID)ssj0000804561 035 $a(PQKBManifestationID)11431472 035 $a(PQKBTitleCode)TC0000804561 035 $a(PQKBWorkID)10814168 035 $a(PQKB)10709516 035 $a(UkCbUP)CR9781139051798 035 $a(MiAaPQ)EBC1099844 035 $a(Au-PeEL)EBL1099844 035 $a(CaPaEBR)ebr10643430 035 $a(CaONFJC)MIL425566 035 $a(PPN)261276085 035 $a(EXLCZ)992670000000326610 100 $a20110307d2013|||| uy| 0 101 0 $aeng 135 $aur||||||||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 14$aThe connected self $ethe ethics and governance of the genetic individual /$fHeather Widdows$b[electronic resource] 210 1$aCambridge :$cCambridge University Press,$d2013. 215 $a1 online resource (xiv, 205 pages) $cdigital, PDF file(s) 225 1 $aCambridge bioethics and law 300 $aTitle from publisher's bibliographic system (viewed on 05 Oct 2015). 311 $a1-107-00860-3 320 $aIncludes bibliographical references and index. 327 $aThe individual self and its critics -- The individualist assumptions of bioethical frameworks -- The genetic self is the connected self -- The failures of individual ethics in the genetic era -- The communal turn -- Developing alternatives: benefit sharing -- Developing alternatives: trust -- The ethical toolbox part one: recognising goods and harms -- The ethical toolbox part two: applying appropriate practices -- Possible futures. 330 $aCurrently, the ethics infrastructure - from medical and scientific training to the scrutiny of ethics committees - focuses on trying to reform informed consent to do a job which it is simply not capable of doing. Consent, or choice, is not an effective ethical tool in public ethics and is particularly problematic in the governance of genetics. Heather Widdows suggests using alternative and additional ethical tools and argues that if individuals are to flourish it is necessary to recognise and respect communal and public goods as well as individual goods. To do this she suggests a two-step process - the 'ethical toolbox'. First the harms and goods of the particular situation are assessed and then appropriate practices are put in place to protect goods and prevent harms. This debate speaks to core concerns of contemporary public ethics and suggests a means to identify and prioritise public and common goods. 410 0$aCambridge bioethics and law. 606 $aMedical ethics 606 $aHuman genetics$xResearch$xMoral and ethical aspects 615 0$aMedical ethics. 615 0$aHuman genetics$xResearch$xMoral and ethical aspects. 676 $a174.2/8 700 $aWiddows$b Heather$f1972-$0935821 801 0$bUkCbUP 801 1$bUkCbUP 906 $aBOOK 912 $a9910814057403321 996 $aThe connected self$94070506 997 $aUNINA