LEADER 03617nam 22007574a 450 001 9910812453503321 005 20200520144314.0 010 $a1-281-95679-1 010 $a9786611956790 010 $a0-226-21311-0 024 7 $a10.7208/9780226213118 035 $a(CKB)1000000000578868 035 $a(EBL)408322 035 $a(OCoLC)476228541 035 $a(SSID)ssj0000178073 035 $a(PQKBManifestationID)11167381 035 $a(PQKBTitleCode)TC0000178073 035 $a(PQKBWorkID)10235105 035 $a(PQKB)10480609 035 $a(MiAaPQ)EBC408322 035 $a(DE-B1597)523914 035 $a(OCoLC)1058394972 035 $a(DE-B1597)9780226213118 035 $a(Au-PeEL)EBL408322 035 $a(CaPaEBR)ebr10271875 035 $a(CaONFJC)MIL195679 035 $a(iGPub)UCHIB0000191 035 $a(EXLCZ)991000000000578868 100 $a20061129d2007 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aInclusion $ethe politics of difference in medical research /$fSteven Epstein 205 $a1st ed. 210 $aChicago $cUniversity of Chicago Press$d2007 215 $a1 online resource (427 p.) 225 1 $aChicago studies in practices of meaning 300 $aDescription based upon print version of record. 311 $a0-226-21309-9 320 $aIncludes bibliographical references (p. [311]-394) and index. 327 $aHow to study a biopolitical paradigm -- Histories of the human subject -- The rise of resistance : framing the critique of the standard human -- The path to reform : aligning categories, targeting the state -- Opposition to reform : controversy, closure, and boundary work -- Formalizing the new regime -- From the standard human to niche standardization -- Counts and consequences : monitoring compliance -- The science of recruitmentology and the politics of trust -- To profile or not to profile : what difference does race make? -- Sex differences and the new politics of women's health -- Whither the paradigm? 330 $aWith Inclusion, Steven Epstein argues that strategies to achieve diversity in medical research mask deeper problems, ones that might require a different approach and different solutions. Formal concern with this issue, Epstein shows, is a fairly recent phenomenon. Until the mid-1980s, scientists often studied groups of white, middle-aged men?and assumed that conclusions drawn from studying them would apply to the rest of the population. But struggles involving advocacy groups, experts, and Congress led to reforms that forced researchers to diversify the population from which they drew for clin 410 0$aChicago studies in practices of meaning. 606 $aMedicine$xResearch$xSocial aspects$zUnited States 606 $aHuman experimentation in medicine$xSocial aspects$zUnited States 606 $aClinical trials$xSocial aspects$zUnited States 606 $aMinorities$xMedical care$zUnited States 606 $aHealth and race$zUnited States 606 $aSocial medicine$zUnited States 615 0$aMedicine$xResearch$xSocial aspects 615 0$aHuman experimentation in medicine$xSocial aspects 615 0$aClinical trials$xSocial aspects 615 0$aMinorities$xMedical care 615 0$aHealth and race 615 0$aSocial medicine 676 $a610.72 700 $aEpstein$b Steven$0250913 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910812453503321 996 $aInclusion$94002279 997 $aUNINA