LEADER 04170nam 22010095 450 001 9910811440603321 005 20230317002500.0 010 $a1-283-27749-2 010 $a9786613277497 010 $a0-520-94823-8 024 7 $a10.1525/9780520948235 035 $a(CKB)2670000000066533 035 $a(EBL)631047 035 $a(OCoLC)699475041 035 $a(SSID)ssj0000471947 035 $a(PQKBManifestationID)11331383 035 $a(PQKBTitleCode)TC0000471947 035 $a(PQKBWorkID)10429620 035 $a(PQKB)11635298 035 $a(DE-B1597)518992 035 $a(OCoLC)703172269 035 $a(DE-B1597)9780520948235 035 $a(MiAaPQ)EBC631047 035 $a(EXLCZ)992670000000066533 100 $a20200424h20102010 fg 0 101 0 $aeng 135 $aurnn#---|u||u 181 $ctxt 182 $cc 183 $acr 200 14$aThe Paradox of Hope $eJourneys through a Clinical Borderland /$fCheryl Mattingly 210 1$aBerkeley, CA :$cUniversity of California Press,$d[2010] 210 4$dİ2010 215 $a1 online resource (286 p.) 300 $aDescription based upon print version of record. 311 0 $a0-520-26734-6 327 $tFront matter --$tContents --$tPrologue --$tAcknowledgments --$t1. The Lobby --$t2. Narrative Matters --$t3. Border Trouble --$t4. Widening the Gap: The Creation of a Conflict Drama --$t5. Plotting Hope --$t6. Daydreaming: Captain Hook Gets Speech Therapy --$t7. Fleeting Hope --$t8. Narrative Phenomenology and the Practice of Hope --$tNotes --$tReferences --$tIndex 330 $aGrounded in intimate moments of family life in and out of hospitals, this book explores the hope that inspires us to try to create lives worth living, even when no cure is in sight. The Paradox of Hope focuses on a group of African American families in a multicultural urban environment, many of them poor and all of them with children who have been diagnosed with serious chronic medical conditions. Cheryl Mattingly proposes a narrative phenomenology of practice as she explores case stories in this highly readable study. Depicting the multicultural urban hospital as a border zone where race, class, and chronic disease intersect, this theoretically innovative study illuminates communities of care that span both clinic and family and shows how hope is created as an everyday reality amid trying circumstances. 606 $aAfrican Americans 606 $aAfrican Americans$xMedical care 606 $aChronically ill children$xMedical care$zUnited States 606 $aMedical anthropology$xMedical care$zUnited States 606 $aPoor$zUnited States 606 $aSocial medicine$zUnited States 606 $aMedical personnel and patient$zUnited States 610 $aaffect theory. 610 $aafrican american. 610 $achronic disease. 610 $achronic illness. 610 $aclass. 610 $aclinical narrative. 610 $aethnography. 610 $afamily life. 610 $ahealth care delivery. 610 $ahealth policy. 610 $ahealth. 610 $ahospitals. 610 $aliving while dying. 610 $amedical humanities. 610 $amedicine. 610 $amodern healthcare. 610 $amulticultural. 610 $anonfiction. 610 $apoverty. 610 $apublic hospitals. 610 $arace. 610 $asick children. 610 $asocial issues. 610 $asocial science. 610 $aterminal illness. 610 $aurban hospital. 610 $aurban life. 615 0$aAfrican Americans. 615 0$aAfrican Americans$xMedical care. 615 0$aChronically ill children$xMedical care 615 0$aMedical anthropology$xMedical care 615 0$aPoor 615 0$aSocial medicine 615 0$aMedical personnel and patient 676 $a362.198 92008996073 700 $aMattingly$b Cheryl$4aut$4http://id.loc.gov/vocabulary/relators/aut$01131774 801 0$bDE-B1597 801 1$bDE-B1597 906 $aBOOK 912 $a9910811440603321 996 $aThe Paradox of Hope$93927822 997 $aUNINA