LEADER 02485nam 22006131 450 001 9910809307103321 005 20241207110046.0 010 $a9781421404424 010 $a1421404427 035 $a(CKB)3240000000065058 035 $a(CaPaEBR)ebrary10790485 035 $a(SSID)ssj0000606230 035 $a(PQKBManifestationID)11973769 035 $a(PQKBTitleCode)TC0000606230 035 $a(PQKBWorkID)10580584 035 $a(PQKB)10373600 035 $a(MiAaPQ)EBC3318769 035 $a(OCoLC)798295750 035 $a(MdBmJHUP)muse1532 035 $a(Au-PeEL)EBL3318769 035 $a(CaPaEBR)ebr10790485 035 $a(ODN)ODN0000718147 035 $a(EXLCZ)993240000000065058 100 $a20101124d2011 uy 0 101 0 $aeng 135 $aurcnu|||||||| 181 $ctxt 182 $cc 183 $acr 200 14$aThe bleeding disease $ehemophilia and the unintended consequences of medical progress /$fStephen Pemberton 205 $a1st ed. 210 $d2011 210 1$aBaltimore :$cJohns Hopkins University Press,$d2011. 215 $a1 online resource (398 p.) 300 $aBibliographic Level Mode of Issuance: Monograph 311 08$a9781421401157 311 08$a1421401150 320 $aIncludes bibliographical references (pages 305-363) and index. 327 $aIntroduction : hemophilia as pathology of progress -- The emergence of the hemophilia concept -- The scientist, the bleeder, and the laboratory -- Vital factors in the making of a masculine world -- Normality within limits -- The hemophiliac's passport to freedom -- Autonomy and other imperatives of the health consumer -- The mismanagement of hemophilia and AIDS -- Conclusion : the governance of clinical progress in a global age. 330 $aIronically, transforming the hope of a normal life into a purchasable commodity for people with bleeding disorders made it all too easy to ignore the potential dangers of delivering greater health and autonomy to hemophilic boys and men. 606 $aHemophilia$xComplications 606 $aHemophilia$zUnited States$xHistory 615 0$aHemophilia$xComplications. 615 0$aHemophilia$xHistory. 676 $a616.1/572 686 $aMED039000$2bisacsh 700 $aPemberton$b Stephen Gregory$01631882 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910809307103321 996 $aThe bleeding disease$94106353 997 $aUNINA