LEADER 05128nam 2200565 a 450 001 9910808342103321 005 20200520144314.0 010 $a1-299-31293-4 010 $a0-85701-055-7 035 $a(CKB)2560000000100532 035 $a(EBL)1157009 035 $a(OCoLC)836405795 035 $a(SSID)ssj0000835780 035 $a(PQKBManifestationID)12362299 035 $a(PQKBTitleCode)TC0000835780 035 $a(PQKBWorkID)10990603 035 $a(PQKB)10805465 035 $a(MiAaPQ)EBC1157009 035 $a(EXLCZ)992560000000100532 100 $a20130417d2013 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 12$aA multi-disciplinary approach to managing Ehlers-Danlos (type III)--hypermobility syndrome $eworking with the chronic complex patient /$fIsobel Knight 210 $aLondon ;$aPhiladelphia, Pa. $cSinging Dragon$dc2013 215 $a1 online resource (364 p.) 300 $aDescription based upon print version of record. 311 $a1-84819-080-8 320 $aIncludes bibliographical references and index. 327 $aA Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) -Hypermobility Syndrome: Working with theChronic Complex Patient; Foreword; Acknowledgements; Preface; Introduction; PART I: THE BODY AND THE SELF; Chapter 1 The body and the self in illness and health: An autoethnographical approach; Chapter 2 Isobel's story; Chapter 3 Visit to consultant rheumatologist; Chapter 4 Implications of diagnosis; PART II: PHYSIOLOGY; Chapter 5 Maslow's Hierarchy of Needs and homeostasis; Chapter 6 Autonomic dysfunction and postural orthostatic tachycardia syndrome (POTS) 327 $aChapter 7 Digestion and bowel problemsChapter 8 Bladder; Chapter 9 Surgical and nursing implications for EDSIII/chronic complex patients; Chapter 10 Hormonal aspects of hypermobility and living with endometriosis; Chapter 11 Sleep and fatigue; Chapter 12 Fatigue and unexpected responses to treatment and incidents; Chapter 13 Crisis, flare-ups and management; Chapter 14 The chronic complex patient and pain management; PART III: PSYCHOLOGY; Preface to Part III: Psychology; Chapter 15 Isobel's experience of working with EDSIII patients as a Bowen therapist 327 $aChapter 16 The physiotherapist and patient relationshipChapter 17 Goal-setting and patient review; Chapter 18 Trust; Chapter 19 The challenging patient; Chapter 20 The doctor/patient relationship and treatment of chronic complex patients; Chapter 21 Learning styles and learning 'difficulties'; Chapter 22 Social media, forums and support groups; Chapter 23 Self-harm, anxiety and depression; Chapter 24 Cognitive analytic therapy (CAT); Chapter 25 Managing complex patients with psychological issues: Isobel's reflection; Chapter 26 Terminating client relationships 327 $aChapter 27 I'm not mad: I have EDS so why would I need to see a psychologist?PART IV: EXERCISE AND REHABILITATION; Chapter 28 Exercise and rehabilitation: EDS patient experiences of physiotherapy and Isobel's 'stages' of treatment; Chapter 29 Imaging exercises and 'less is more'; Chapter 30 Pilates, physiolates and core stability; Chapter 31 Movement patterns: Overuse and muscle stiffness; Chapter 32 Neurology and movement disorders; Chapter 33 Measuring treatment outcomes and assessing progress; Chapter 34 Returning to normal life 327 $aChapter 35 Speech, swallowing and hearing difficulties, TMJ and eye problemsChapter 36 Cervical spine; Chapter 37 The trauma of birth and post-traumatic stress disorder; Chapter 38 The Bowen technique and working on fascia and connective tissue disorders; Chapter 39 The Feldenkrais Method®; Chapter 40 Cardiovascular and endurance work; Chapter 41 Isobel 'now' and thoracic spine; Chapter 42 Conclusion; Appendix 1: Diagnostic criteria; Appendix 2: Sample forms; Appendix 3: Useful contacts; References; Further reading; List of contributors; Subject Index; Author Index 330 $aThe complex effects of Ehlers-Danlos Syndrome (Type 3, Hypermobility), or EDSIII, on a patienta???s physical and mental wellbeing are extremely challenging for everyone involved, requiring a multidisciplinary care team and enormous dedication from the patient. This book presents an overview of what it means to be a chronic complex patient, examining the wide range of physiological and psychological implications associated with EDSIII and other conditions such as endometriosis and fibromyalgia. It explores the exercise and rehabilitation work involved in managing the condition effectively, consi 606 $aEhlers-Danlos Syndrome$vPersonal Narratives 606 $aHealth care teams$vPersonal Narratives 615 0$aEhlers-Danlos Syndrome 615 0$aHealth care teams 676 $a616.7/7 700 $aKnight$b Isobel$01668143 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910808342103321 996 $aA multi-disciplinary approach to managing Ehlers-Danlos (type III)--hypermobility syndrome$94028537 997 $aUNINA