LEADER 04246nam 2200601 450 001 9910797371203321 005 20230807221122.0 010 $a0-309-37115-5 010 $a0-309-37113-9 035 $a(CKB)3710000000450433 035 $a(EBL)3439906 035 $a(MiAaPQ)EBC3439906 035 $a(Au-PeEL)EBL3439906 035 $a(CaPaEBR)ebr11091815 035 $a(OCoLC)914165950 035 $a(EXLCZ)993710000000450433 100 $a20150904h20152015 uy| 0 101 0 $aeng 135 $aurcnu|||||||| 181 $2rdacontent 182 $2rdamedia 183 $2rdacarrier 200 10$aGenomics-enabled learning health care systems $egathering and using genomic information to improve patient care and research : workshop summary /$fRoundtable on Translating Genomic-Based Research for Health, Board on Health Sciences Policy ; Sarah H. Beachy, Steve Olson and Adam C. Berger, rapporteurs ; Institute of Medicine of the National Academies 210 1$aWashington, District of Columbia :$cThe National Academies Press,$d[2015] 210 4$dİ2015 215 $a1 online resource (116 p.) 300 $aDescription based upon print version of record. 311 $a0-309-37112-0 320 $aIncludes bibliographical references. 327 $aFront Matter; Reviewers; Acknowledgments; Contents; Boxes, Figures, and Table; Abbreviations and Acronyms; 1 Introduction and Themes of the Workshop; 2 Advancing Patient Care and Research with Genomic Information; 3 Translation of Genomics for Patient Care and Research; 4 Genomics and the EHR in a Learning Health Care System; 5 Representing Genomic Information in the EHR Ecosystem; 6 Possible Next Steps; References; Appendix A: Workshop Agenda; Appendix B: Speaker Biographical Sketches; Appendix C: Statement of Task; Appendix D: Registered Attendees 330 $a"The inclusion of genomic data in a knowledge-generating health care system infrastructure is one promising way to harness the full potential of that information to provide better patient care. In such a system, clinical practice and research influence each other with the goal of improving the efficiency and effectiveness of disease prevention, diagnosis, and treatment. To examine pragmatic approaches to incorporating genomics in learning health care systems, the Institute of Medicine Roundtable on Translating Genomic-Based Research for Health hosted a workshop which convened a variety of stakeholder groups, including commercial developers, health information technology professionals, clinical providers, academic researchers, patient groups, and government and health system representatives, to present their perspectives and participate in discussions on maximizing the value that can be obtained from genomic information. The workshop examined how a variety of systems are capturing and making use of genomic data to generate knowledge for advancing health care in the 21st century. It also sought to evaluate the challenges, opportunities, and best practices for capturing or using genomic information in knowledge-generating health care systems. Genomics-Enabled Learning Health Care Systems summarizes the presentations and discussion of the workshop."--Publisher's description. 606 $aMedicine$xInformation technology$zUnited States$vCongresses 606 $aMedical protocols$vCongresses 606 $aInformation storage and retrieval systems$xCommunity health services$vCongresses 606 $aMedical care$zUnited States$xSafety measures$vCongresses 607 $aUnited States 607 $aUnited States$2fast 615 0$aMedicine$xInformation technology 615 0$aMedical protocols 615 0$aInformation storage and retrieval systems$xCommunity health services 615 0$aMedical care$xSafety measures 676 $a572.8 702 $aBeachy$b Sarah H. 702 $aOlsen$b Steven 702 $aBerger$b Adam C. 712 02$aInstitute of Medicine (U.S.).$bRoundtable on Translating Genomic-Based Research for Health, 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910797371203321 996 $aGenomics-enabled learning health care systems$93734394 997 $aUNINA