LEADER 05530nam 2200649 a 450 001 9910791841303321 005 20230207232840.0 010 $a0-309-16137-1 010 $a1-282-78755-1 010 $a9786612787553 010 $a0-309-15707-2 035 $a(CKB)2560000000067683 035 $a(EBL)3378662 035 $a(SSID)ssj0000414658 035 $a(PQKBManifestationID)11275128 035 $a(PQKBTitleCode)TC0000414658 035 $a(PQKBWorkID)10408497 035 $a(PQKB)10718152 035 $a(MiAaPQ)EBC3378662 035 $a(Au-PeEL)EBL3378662 035 $a(CaPaEBR)ebr10420221 035 $a(CaONFJC)MIL278755 035 $a(OCoLC)923282237 035 $a(EXLCZ)992560000000067683 100 $a20101026d2010 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aConducting biosocial surveys$b[electronic resource] $ecollecting, storing, accessing, and protecting biospecimens and biodata /$fRobert M. Hauser ... [et al.], editors ; Panel on Collecting, Storing, Accessing, and Protecting Biological Specimens and Biodata in Social Surveys ; Committee on National Statistics ; Committee on Population, Division of Behavioral and Social Sciences and Education 210 $aWashington, D.C. $cNational Academies Press$d2010 215 $a1 online resource (125 p.) 225 0 $aNational Research Council 300 $aDescription based upon print version of record. 311 $a0-309-15706-4 320 $aIncludes bibliographical references. 327 $a""Front Matter ""; ""Acknowledgments""; ""Contents""; ""Summary""; ""1 Introduction""; ""2 Collecting, Storing, Using, and Distributing Biospecimens""; ""3 Protecting Privacy and Confidentiality: Sharing Digital Representations of Biological and Social Data""; ""4 Informed Consent""; ""5 Findings, Conclusions, and Recommendations ""; ""References""; ""Appendix A: Agenda for the Workshop on Collecting, Storing, Protecting, and Accessing Biological Data Collected in Social Surveys"" 327 $a""Appendix B: Participants in the Workshop on Collecting, Storing, Protecting, and Accessing Biological Data Collected in Social Surveys""""Appendix C: Biographical Sketches of Panel Members and Staff""; ""Appendix D: Acronyms""; ""Committee on National Statistics""; ""Committee on Population"" 330 $a"Recent years have seen a growing tendency for social scientists to collect biological specimens such as blood, urine, and saliva as part of large-scale household surveys. By combining biological and social data, scientists are opening up new fields of inquiry and are able for the first time to address many new questions and connections. But including biospecimens in social surveys also adds a great deal of complexity and cost to the investigator's task. Along with the usual concerns about informed consent, privacy issues, and the best ways to collect, store, and share data, researchers now face a variety of issues that are much less familiar or that appear in a new light. In particular, collecting and storing human biological materials for use in social science research raises additional legal, ethical, and social issues, as well as practical issues related to the storage, retrieval, and sharing of data. For example, acquiring biological data and linking them to social science databases requires a more complex informed consent process, the development of a biorepository, the establishment of data sharing policies, and the creation of a process for deciding how the data are going to be shared and used for secondary analysis--all of which add cost to a survey and require additional time and attention from the investigators. These issues also are likely to be unfamiliar to social scientists who have not worked with biological specimens in the past. Adding to the attraction of collecting biospecimens but also to the complexity of sharing and protecting the data is the fact that this is an era of incredibly rapid gains in our understanding of complex biological and physiological phenomena. Thus the tradeoffs between the risks and opportunities of expanding access to research data are constantly changing. Conducting Biosocial Surveys offers findings and recommendations concerning the best approaches to the collection, storage, use, and sharing of biospecimens gathered in social science surveys and the digital representations of biological data derived therefrom. It is aimed at researchers interested in carrying out such surveys, their institutions, and their funding agencies."--Society website. 606 $aSocial surveys$xMethodology 606 $aBiological specimens$xCollection and preservation 615 0$aSocial surveys$xMethodology. 615 0$aBiological specimens$xCollection and preservation. 676 $a300.723 701 $aHauser$b Robert M$0381824 712 02$aNational Research Council (U.S.).$bPanel on Collecting, Storing, Accessing, and Protecting Biological Specimens and Biodata in Social Surveys. 712 02$aNational Research Council (U.S.).$bCommittee on National Statistics. 712 02$aNational Research Council (U.S.).$bCommittee on Population. 712 02$aNational Research Council (U.S.).$bDivision of Behavioral and Social Sciences and Education. 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910791841303321 996 $aConducting biosocial surveys$93691150 997 $aUNINA