LEADER 05403nam 2201405 a 450 001 9910790953203321 005 20230126205336.0 010 $a1-4008-4041-4 010 $a9786613290939 010 $a1-283-29093-6 024 7 $a10.1515/9781400840410 035 $a(CKB)2550000001252140 035 $a(EBL)784516 035 $a(OCoLC)758374143 035 $a(SSID)ssj0000536219 035 $a(PQKBManifestationID)11346962 035 $a(PQKBTitleCode)TC0000536219 035 $a(PQKBWorkID)10546606 035 $a(PQKB)11039704 035 $a(MiAaPQ)EBC784516 035 $a(StDuBDS)EDZ0000515055 035 $a(MdBmJHUP)muse37047 035 $a(DE-B1597)447680 035 $a(OCoLC)979779984 035 $a(DE-B1597)9781400840410 035 $a(Au-PeEL)EBL784516 035 $a(CaPaEBR)ebr10503237 035 $a(CaONFJC)MIL329093 035 $a(EXLCZ)992550000001252140 100 $a20110425d2011 uy 0 101 0 $aeng 135 $aurcn||||||||| 181 $ctxt 182 $cc 183 $acr 200 14$aThe enculturated gene$b[electronic resource] $esickle cell health politics and biological difference in West Africa /$fDuana Fullwiley 205 $aCourse Book 210 $aPrinceton, N.J. $cPrinceton University Press$d2011 215 $a1 online resource (727 p.) 300 $aDescription based upon print version of record. 311 $a0-691-12317-9 311 $a0-691-12316-0 320 $aIncludes bibliographical references and index. 327 $aIntroduction: the powers of association -- Healthy sicklers with "mild" disease: local illness affects and population-level effects -- The biosocial politics of plants and people -- Attitudes of care -- Localized biologies: mapping race and sickle cell difference in French West Africa -- Ordering illness: heterozygous "trait" suffering in the land of the mild disease -- The work of patient advocacy -- Conclusion: economic and health futures amid hope and despair. 330 $aIn the 1980's, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell ""mild"" in a social setting where public health priorities and economic austerity programs have forced people to 606 $aSickle cell anemia$xSocial aspects$zSenegal 606 $aSickle cell anemia$xGenetic aspects 606 $aSickle cell anemia$xPatients$xServices for$zSenegal 606 $aGenetic disorders$xSocial aspects$zSenegal 606 $aKinship$xHealth aspects$zSenegal 610 $aAfrica. 610 $aAfrican anthropology. 610 $aAfrican genetics. 610 $aAfrican sicklers. 610 $aAlbert Royer Children's Hospital. 610 $aCNTS. 610 $aCentre nationale de transfusion sanguine. 610 $aDNA haplotypes. 610 $aDNA sequences. 610 $aHbAS. 610 $aInternational Organization for the Fight against Sickle Cell. 610 $aNational Blood Transfusion Center. 610 $aOILD. 610 $aRFLP. 610 $aRestriction Fragment Length Polymorphism. 610 $aSenegal. 610 $aSenegalese attitudes. 610 $aSenegalese sickle cell. 610 $aalternative care. 610 $abiological expressions. 610 $abiosocial politics. 610 $aculture. 610 $adisease experiences. 610 $adisease expression. 610 $aeconomic austerity. 610 $aeconomically triaged care. 610 $aethnic population purity. 610 $afagara. 610 $agenetic difference. 610 $agenetic sequence. 610 $ageneticists. 610 $aglobal health problems. 610 $aglobal health. 610 $ahealing practices. 610 $ahealth intervention. 610 $ahealth. 610 $ahealthy sicklers. 610 $aheterozygous sickle cell. 610 $alow-tech strategy. 610 $amultilateral institutions. 610 $anormalization techniques. 610 $apatient advocacy. 610 $apolitical apathy. 610 $apopulation. 610 $apublic health. 610 $apublic neglect. 610 $aself-care. 610 $asickle cell DNA markers. 610 $asickle cell anemia. 610 $asickle cell gene. 610 $asickle cell research. 610 $asickle cell trait. 610 $asicklers. 610 $asocial networks. 610 $atraditional plants. 610 $avitality. 615 0$aSickle cell anemia$xSocial aspects 615 0$aSickle cell anemia$xGenetic aspects. 615 0$aSickle cell anemia$xPatients$xServices for 615 0$aGenetic disorders$xSocial aspects 615 0$aKinship$xHealth aspects 676 $a362.196/15271009663 700 $aFullwiley$b Duana$01465353 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910790953203321 996 $aThe enculturated gene$93675338 997 $aUNINA