LEADER 03222nam 2200673 a 450 001 9910782340103321 005 20230721033218.0 010 $a1-281-73374-1 010 $a9786611733742 010 $a1-84642-731-2 035 $a(CKB)1000000000552525 035 $a(EBL)350331 035 $a(OCoLC)291091399 035 $a(SSID)ssj0000121109 035 $a(PQKBManifestationID)11999426 035 $a(PQKBTitleCode)TC0000121109 035 $a(PQKBWorkID)10093095 035 $a(PQKB)10643741 035 $a(MiAaPQ)EBC350331 035 $a(Au-PeEL)EBL350331 035 $a(CaPaEBR)ebr10233830 035 $a(CaONFJC)MIL173374 035 $a(EXLCZ)991000000000552525 100 $a20070607d2008 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aChildren with complex and continuing health needs$b[electronic resource] $ethe experiences of children, families and care staff /$fJaqui Hewitt-Taylor 210 $aLondon ;$aPhiladelphia $cJessica Kingsley Publishers$d2008 215 $a1 online resource (211 p.) 300 $aDescription based upon print version of record. 311 $a1-84985-402-5 311 $a1-84310-502-0 320 $aIncludes bibliographical references and indexes. 327 $aChildren with complex and continuing needs -- Being a child or young person with complex needs -- Being the parent of a child who has complex needs -- Premature babies -- Families whose children have complex needs -- Diagnosis -- Support -- Healthcare -- Education -- Society -- Working with children and families -- Conclusion. 330 $a'This book draws on the experiences of a number of families to provide a valuable and deeply moving insight into what it means to raise a child with complex needs. It highlights both the joys and the challenges that families face. In doing so it raises important issues about how services in the UK are currently responding to children with complex needs and their families as well as pervasive disablist attitudes within society. This book will provide students and practitioners from a range of disciplines with a valuable window into families' lives and challenge them to reflect on how they are s 606 $aChronically ill children$xCare 606 $aChildren with disabilities$xCare 606 $aChronically ill children$xRehabilitation 606 $aChildren with disabilities$xRehabilitation 606 $aChronically ill children$xFamily relationships 606 $aChildren with disabilities$xFamily relationships 615 0$aChronically ill children$xCare. 615 0$aChildren with disabilities$xCare. 615 0$aChronically ill children$xRehabilitation. 615 0$aChildren with disabilities$xRehabilitation. 615 0$aChronically ill children$xFamily relationships. 615 0$aChildren with disabilities$xFamily relationships. 676 $a618.92 700 $aHewitt-Taylor$b Jaqui$0872026 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910782340103321 996 $aChildren with complex and continuing health needs$93680076 997 $aUNINA