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100   $a20090501d2010      uy             0
101 0 $aeng
135   $aur|n|---|||||
181   $ctxt
182   $cc
183   $acr
200 10$aLiving with learning disabilities, dying with cancer$b[electronic resource] $ethirteen personal stories /$fIrene Tuffrey-Wijne; foreword by Sheila Rollins
210   $aLondon ;$aPhiladelphia $cJessica Kingsley$d2010
215   $a1 online resource (274 p.)
300   $aDescription based upon print version of record.
311   $a1-84985-612-5 
311   $a1-84905-027-9 
320   $aIncludes bibliographical references and index.
327   $aFRONT COVER; Living with Learning Disabilities, Dying with Cancer:Thirteen Personal Stories; Contents; ACKNOWLEDGEMENTS; Foreword by Professor Sheila Hollins; PREFACE; Chapter 1:Three Stories; John Davies; Vincent Sweeney; Nick Ballard; Chapter 2: Diagnosis and Treatment; Lily Lamb; The cancer diagnosis; Cancer treatments; Summary; Chapter 3:Truth-telling and Understanding; Lily Lamb's understanding of cancer; Were people told the truth?; Understanding cancer and dying; Sally Burnett: 'Don't tell her'; Breaking bad news; Summary; Chapter 4:Family and Friends; Lily Lamb and her family
327   $aThe importance of familiesPete Carpenter and his sister Daphne; Friends; Summary; Chapter 5:Unprepared Services, Inexperienced Carers; Lily Lamb and her carers; Pete Carpenter and his carers; Services were not prepared for death; The emotional impact of caring; Health care professionals; Summary; Chapter 6:Dependent Lives; The story of Lily Lamb's life; Deprivation and dependence; Forced jollity; The importance of listening; Summary; Chapter 7:Resilience; Richard Horwood: 'Don't ever give up'; The features of resilience; Summary; Chapter 8:Dying and Beyond; Lily Lamb's death; Dying; Funerals
327   $aGrieving and rememberingSummary; Chapter 9:Learning Lessons; What did people want and need?; Conclusion; APPENDIX 1: THE PEOPLE IN THIS BOOK; APPENDIX 2: METHODS; ENDNOTES; RESOURCES; REFERENCES; INDEX
330   $aThis book is a powerful and moving account of the experiences of 13 people with learning disabilities who were living with cancer. The author gained a unique understanding of what it is like for individuals with learning disabilities to live with deteriorating health and how this may impact upon their families, friends and carers.
606   $aCancer$xPatients$zGreat Britain$vBiography
606   $aLearning disabled$zGreat Britain$vBiography
615  0$aCancer$xPatients
615  0$aLearning disabled
676   $a362.196/9940092
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700   $aTuffrey-Wijne$b Irene$f1963-$01515303
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801  1$bMiAaPQ
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906   $aBOOK
912   $a9910781154003321
996   $aLiving with learning disabilities, dying with cancer$93750958
997   $aUNINA