LEADER 03454nam 2200613Ia 450 001 9910780795003321 005 20221108035509.0 010 $a1-282-35177-X 010 $a9786612351778 010 $a0-300-15177-2 024 7 $a10.12987/9780300151770 035 $a(CKB)2430000000010699 035 $a(StDuBDS)AH23050008 035 $a(SSID)ssj0000313439 035 $a(PQKBManifestationID)11274002 035 $a(PQKBTitleCode)TC0000313439 035 $a(PQKBWorkID)10358552 035 $a(PQKB)10127129 035 $a(DE-B1597)484859 035 $a(OCoLC)593242110 035 $a(DE-B1597)9780300151770 035 $a(Au-PeEL)EBL3420613 035 $a(CaPaEBR)ebr10348510 035 $a(CaONFJC)MIL235177 035 $a(OCoLC)923594737 035 $a(MiAaPQ)EBC3420613 035 $a(EXLCZ)992430000000010699 100 $a20080211d2008 uy 0 101 0 $aeng 135 $aur||||||||||| 181 $ctxt 182 $cc 183 $acr 200 14$aThe woman who walked into the sea$b[electronic resource] $eHuntington's and the making of a genetic disease /$fAlice Wexler 210 $aNew Haven $cYale University Press$dc2008 215 $a1 online resource (288 p.) 300 $aBibliographic Level Mode of Issuance: Monograph 311 $a0-300-10502-9 320 $aIncludes bibliographical references (p. 189-241) and index. 327 $tFrontmatter -- $tContents -- $tForeword -- $tAcknowledgments -- $tIntroduction -- $t1. The Death of Phebe Hedges -- $t2. The Social Course of St. Vitus's Dance -- $t3. Inventing Hereditary Chorea -- $t4. Chorea and the Clinical Gaze -- $t5. The Eyes of Elizabeth B. Muncey, M.D. -- $t6. Myths of Origins and Endings -- $tAbbreviations -- $tNotes -- $tIndex 330 $aWhen Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington's chorea, and today it is known as Huntington's disease. This book is the first history of Huntington's in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington's as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to "belong to the disease"; the emergence of Huntington's chorea as a clinical entity; and the early-twentieth-century transformation of this disorder into a cautionary eugenics tale. In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease. 606 $aHuntington's chorea$zNew York (State)$xHistory$y19th century 606 $aHuntington's chorea$zNew York (State)$xHistory$y20th century 615 0$aHuntington's chorea$xHistory 615 0$aHuntington's chorea$xHistory 676 $a616.8/510097471 700 $aWexler$b Alice$f1942-$01555731 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910780795003321 996 $aThe woman who walked into the sea$93817870 997 $aUNINA