LEADER 02814nam 2200589Ia 450 001 9910780401103321 005 20230617030020.0 010 $a1-280-17936-8 010 $a9786610179367 010 $a0-309-52841-0 035 $a(CKB)111087027009004 035 $a(EBL)3375883 035 $a(SSID)ssj0000270943 035 $a(PQKBManifestationID)11217865 035 $a(PQKBTitleCode)TC0000270943 035 $a(PQKBWorkID)10262405 035 $a(PQKB)11742895 035 $a(MiAaPQ)EBC3375883 035 $a(Au-PeEL)EBL3375883 035 $a(CaPaEBR)ebr10049189 035 $a(CaONFJC)MIL17936 035 $a(OCoLC)923259546 035 $a(EXLCZ)99111087027009004 100 $a20020906d2003 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 00$aWhen children die$b[electronic resource] $eimproving palliative and end-of-life care for children and their families : [popular summary] /$fCommittee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors 210 $aWashington, D.C. $cNational Academy Press$dc2003 215 $a1 online resource (16 p.) 300 $a"This document is a brief summary of the Institute of Medicine report entitled "When Children Die: Improving Palliative and End-of-Life Care for Children"." -- p.ii 311 $a0-309-09076-8 327 $a""What is palliative care?""; ""When children need palliative care.""; ""Why it can be hard to get palliative care.""; ""We can give very ill children the palliative care they need.""; ""1. Children should have care that is focused on their needs and the needs of their families.""; ""2. Health plans should make it easier for children and families to get palliative care.""; ""3. Health care professionals should be trained to give palliative care to children.""; ""4. Researchers should find out more about what care works best."" 327 $a""We can improve palliative care for very ill children and their families.""""A word to families . . .""; ""We can improve palliative care for very ill children and their families."" 606 $aTerminally ill children$xCare 606 $aTerminally ill children$xFamily relationships 606 $aPalliative treatment 615 0$aTerminally ill children$xCare. 615 0$aTerminally ill children$xFamily relationships. 615 0$aPalliative treatment. 676 $a362.1/75/083 701 $aField$b Marilyn J$g(Marilyn Jane)$01477341 701 $aBehrman$b Richard E.$f1931-$0630342 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910780401103321 996 $aWhen children die$93774672 997 $aUNINA