LEADER 04170nam  22007572  450 
001 9910778587803321
005 20151005020622.0
010   $a0-511-84746-7
010   $a1-107-18966-7
010   $a1-107-62542-4
010   $a1-282-33691-6
010   $a9786612336911
010   $a0-511-63437-4
010   $a0-511-63482-X
010   $a0-511-63244-4
010   $a0-511-63123-5
010   $a0-511-63364-5
035   $a(CKB)1000000000804239
035   $a(EBL)461094
035   $a(OCoLC)609845622
035   $a(SSID)ssj0000297801
035   $a(PQKBManifestationID)11210105
035   $a(PQKBTitleCode)TC0000297801
035   $a(PQKBWorkID)10342933
035   $a(PQKB)11287531
035   $a(UkCbUP)CR9780511635274
035   $a(MiAaPQ)EBC461094
035   $a(Au-PeEL)EBL461094
035   $a(CaPaEBR)ebr10349740
035   $a(CaONFJC)MIL233691
035   $a(PPN)261277391
035   $a(EXLCZ)991000000000804239
100   $a20090923d2009||||  uy|            0
101 0 $aeng
135   $aur|||||||||||
181   $ctxt$2rdacontent
182   $cc$2rdamedia
183   $acr$2rdacarrier
200 04$aThe governance of genetic information $ewho decides? /$fedited by Heather Widdows and Caroline Mullen$b[electronic resource]
210  1$aCambridge :$cCambridge University Press,$d2009.
215   $a1 online resource (xi, 235 pages) $cdigital, PDF file(s)
225 1 $aCambridge law, medicine, and ethics ;$v9
300   $aTitle from publisher's bibliographic system (viewed on 05 Oct 2015).
311   $a0-511-63527-3 
311   $a0-521-50991-2 
320   $aIncludes bibliographical references.
327   $tThe medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Søren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches /$rKathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.
330   $aThis volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.
410  0$aCambridge law, medicine, and ethics ;$v9.
606   $aGenetic screening$xMoral and ethical aspects
606   $aGenetic screening$xGovernment policy
606   $aPrivacy, Right of
606   $aMedical records$xAccess control
615  0$aGenetic screening$xMoral and ethical aspects.
615  0$aGenetic screening$xGovernment policy.
615  0$aPrivacy, Right of.
615  0$aMedical records$xAccess control.
676   $a362.196/04207
702   $aWiddows$b Heather$f1972-
702   $aMullen$b Caroline
801  0$bUkCbUP
801  1$bUkCbUP
906   $aBOOK
912   $a9910778587803321
996   $aThe governance of genetic information$93802880
997   $aUNINA