LEADER 03634nam 22006854a 450 001 9910777043603321 005 20230613122514.0 010 $a1-281-45813-9 010 $a9786611458133 010 $a90-474-1171-4 024 7 $a10.1163/ej.9789004155596.i-329 035 $a(CKB)1000000000412861 035 $a(EBL)468193 035 $a(OCoLC)238518855 035 $a(SSID)ssj0000161763 035 $a(PQKBManifestationID)11151826 035 $a(PQKBTitleCode)TC0000161763 035 $a(PQKBWorkID)10199096 035 $a(PQKB)11110604 035 $a(MiAaPQ)EBC468193 035 $a(nllekb)BRILL9789047411710 035 $a(Au-PeEL)EBL468193 035 $a(CaPaEBR)ebr10234948 035 $a(CaONFJC)MIL145813 035 $a(PPN)174397925 035 $a(EXLCZ)991000000000412861 100 $a20070126d2007 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 00$aGenomics and public health$b[electronic resource] $elegal and socio-ethical perspectives /$fedited by Bartha Maria Knoppers 210 $aLeiden ;$aBoston $cMartinus Nijhoff$dc2007 215 $a1 online resource (341 p.) 225 0 $aNijhoff eBook titles 2007 300 $aDescription based upon print version of record. 311 $a90-04-15559-7 320 $aIncludes bibliographical references. 327 $tPreliminary Material /$rBartha Maria Knoppers --$tA Introduction: Expansion of Screening? /$rJ. Gerard Loeber --$tB Introduction: Newborn Screening: Storage and Access for Research? /$rEllen WRIGHT Clayton --$tIntroduction: of Genomics and Public Health: Building Public Goods? /$rBartha Maria Knoppers --$tIntroduction: the Role of International Stakeholders in Genomics and Public Health /$rAndrea Boggio. 330 $aWhen genomics and public health are integrated into society, it will create as many responsibilities as rights for citizens, researchers, and decision makers. Indeed, the expression of genetic risk factors in both common and infectious diseases is of great interest to public health. Policy development in this area then needs to tackle crucial themes such as: research and its application to public health and genomic medicine, the authority of the state, the right to privacy, and the roles and responsibilities of citizens and the State. Considering the current fears of a world-wide pandemic, this book is a timely and insightful exploration of both research possibilities and the role of the state. It will help to understand the limits of possible state access to biobanks and data. It examines the issue of the possible use of newborn screening programmes by public health authorities. It also attempts to understand the protection of individual privacy and the public interest in the promotion of health and the prevention of disease. Moreover, do citizens have a say? Will public attitudes be different towards research in public health genomics compared to genetic testing? 606 $aGenetic screening$xLaw and legislation 606 $aGenomics 606 $aGenomics$xMoral and ethical aspects 606 $aPublic health 615 0$aGenetic screening$xLaw and legislation. 615 0$aGenomics. 615 0$aGenomics$xMoral and ethical aspects. 615 0$aPublic health. 676 $a340.2 676 $a344.04/196 676 $a344.04196 701 $aKnoppers$b Bartha Maria$0262861 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910777043603321 996 $aGenomics and public health$93806072 997 $aUNINA