LEADER 05117nam 22008895 450 001 9910737295903321 005 20241120180355.0 010 $a3-031-27223-4 024 7 $a10.1007/978-3-031-27223-3 035 $a(CKB)5580000000592296 035 $a(MiAaPQ)EBC30733648 035 $a(Au-PeEL)EBL30733648 035 $a(DE-He213)978-3-031-27223-3 035 $a(OCoLC)1396698421 035 $a(EXLCZ)995580000000592296 100 $a20230831d2023 u| 0 101 0 $aeng 135 $aurcnu|||||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aChallenging Assumptions Around Dementia $eUser-led Research and Untold Stories /$fby Rosalie Ashworth, Sue Fyvel, Alyson Hill, Chris Maddocks, Masood Qureshi, David Ross, Stuart Hay, Martin Robertson, Willy Gilder, Winnie Henry, Myra Lamont, Agnes Houston, Fred S. Wilson 205 $a1st ed. 2023. 210 1$aCham :$cSpringer International Publishing :$cImprint: Palgrave Macmillan,$d2023. 215 $a1 online resource (154 pages) 311 $a3-031-27222-6 327 $a1. Coproducing a book on dementia research -- 2. Taking part in Alzheimer?s disease research -- 3. Taking part in Vascular dementia research -- 4. Taking part in Fronto-Temporal dementia research -- 5. Taking part in Parkinson?s dementia research -- 6. Taking part in dementia with lewy bodies research -- 7. Taking part in PCA dementia research -- 8. Lessons for future research in dementia. 330 $aThis open access book explores the expectations surrounding dementia, what it ?looks like? and how people have been treated by others. It aims to raise awareness of the different types of dementia, and how they impact the brain, body, and lived experience, including experience of Alzheimer?s disease, Vascular Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia, Semantic Dementia, and Lewy Body Dementia. The co-authors reflect on their experience with informal and formal care, before finishing with a focus on the spectrum of dementia research from clinical trials to user-led research. Throughout the book, co-authors have shared personal stories of how dementia has affected them and people with lived experience of dementia share what they wish people knew about living with the disease. Co-produced by people with lived experience of dementia, academics and health care professionals, this book is an accessible resource about dementia from the perspective of people actively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public. Dr Rosie Ashworth leads Partners in Research for NRS Neuroprogressive and Dementia Network, UK. As a research psychologist, Rosie is passionate about co-production, ethics, and actively involving people with lived experience in research. She is also the co-lead for ENRICH Scotlands ?Patient and Public Involvement? group RICH (Research in Care Homes) Voices, a Fellow with Advanced Higher Education, an advisor to the Dementia Enquirers, and a volunteer for About Dementia. Partners in Research co-authors including Agnes Houston, Chris Maddocks, David Ross, Fred S. Wilson, Masood Qureshi, Martin Robertson, Myra Lamont, Stuart Hay, Sue Fyvel, Willy Gilder, Winnie Henry, and Alyson Hill. 606 $aGeriatrics 606 $aClinical psychology 606 $aNervous system$xDiseases 606 $aMental health 606 $aClinical health psychology 606 $aPsychology$xMethodology 606 $aGeriatrics 606 $aClinical Psychology 606 $aNeurological Disorders 606 $aMental Health 606 $aHealth Psychology 606 $aPsychological Methods 606 $aDemència$2thub 606 $aAssaigs clínics$2thub 606 $aTestimonis$2thub 608 $aLlibres electrònics$2thub 615 0$aGeriatrics. 615 0$aClinical psychology. 615 0$aNervous system$xDiseases. 615 0$aMental health. 615 0$aClinical health psychology. 615 0$aPsychology$xMethodology. 615 14$aGeriatrics. 615 24$aClinical Psychology. 615 24$aNeurological Disorders. 615 24$aMental Health. 615 24$aHealth Psychology. 615 24$aPsychological Methods. 615 7$aDemència 615 7$aAssaigs clínics 615 7$aTestimonis 676 $a616.83 700 $aAshworth$b Rosalie$01424266 701 $aFyvel$b Sue$01424267 701 $aHill$b Alyson$01424268 701 $aMaddocks$b Chris$01424269 701 $aQureshi$b Masood$01424270 701 $aRoss$b David$026514 701 $aHay$b Stuart$01424271 701 $aRobertson$b Martin$0187156 701 $aGilder$b Willy$01424272 701 $aHenry$b Winnie$01424273 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910737295903321 996 $aChallenging Assumptions Around Dementia$93553391 997 $aUNINA