LEADER 03059nam 22006013 450 001 9910588787003321 005 20240408210944.0 010 $a3-030-97606-8 035 $a(CKB)5700000000118003 035 $a(MiAaPQ)EBC7079636 035 $a(Au-PeEL)EBL7079636 035 $a(oapen)https://directory.doabooks.org/handle/20.500.12854/92440 035 $a(PPN)264195833 035 $a(EXLCZ)995700000000118003 100 $a20220919d2022 uy 0 101 0 $aeng 135 $aurcnu|||||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aAxial Spondyloarthritis 210 $aCham$cSpringer Nature$d2022 210 1$aCham :$cSpringer International Publishing AG,$d2022. 210 4$d©2022. 215 $a1 online resource (122 pages) 311 $a3-030-97605-X 330 $aThis open access book provides an overview of the International Map of Axial Spondyloarthritis (IMAS) project -focusing on Europe-, a wide-ranging, multi-disciplinary collaboration between academic groups, Health Care Professionals (HCPs), patient organizations and Novartis. IMAS was conceived to improve knowledge of Axial Spondyloarthritis (axSpA) and raise awareness of its heavy burden globally. By asking more than 2,000 patients across Europe about the impact of axSpA on multiple aspects of their life, the full extent of this disease was investigated from a direct patient perspective. This allowed a unique understanding of how living with axSpA affects the daily lives and well-being of patients, and how this varies between European countries. Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients will find this book to be an indispensable resource for improving the understanding of this chronic condition, including patients? clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society. 517 $aAxial Spondyloarthritis 606 $aRheumatology$2bicssc 606 $aEspondiloartritis anquilosant$2thub 608 $aLlibres electrònics$2thub 610 $aNon-radiographic axial spondyloarthritis 610 $aAxial spondyloarthritis 610 $aAnkylosing spondylitis 610 $aPatient survey 610 $aQuality of life 615 7$aRheumatology 615 7$aEspondiloartritis anquilosant 700 $aGarrido-Cumbrera$b Marco$01256084 701 $aNavarro-Compán$b Victoria$01256085 701 $aBundy$b Christine$01256086 701 $aMahapatra$b Raj$01256087 701 $aMakri$b Souzi$01256088 701 $aDelgado-Domínguez$b Carlos J$01256089 701 $aPlazuelo-Ramos$b Pedro$01256090 701 $aPoddubnyy$b Denis$01256091 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910588787003321 996 $aAxial Spondyloarthritis$92911909 997 $aUNINA