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035   $a(CKB)4100000012879373
035   $a(UkCbUP)CR9781108652599
035   $a(oapen)https://directory.doabooks.org/handle/20.500.12854/90946
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101 0 $aeng
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181   $ctxt$2rdacontent
182   $cc$2rdamedia
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200 10$aEmbodied narratives $eprotecting identity interests through ethical governance of bioinformation /$fEmily Postan$b[electronic resource]
210   $cCambridge University Press$d2022
210  1$aCambridge ;$aNew York, NY :$cCambridge University Press,$d2022.
215   $a1 online resource (xiv, 296 pages) $cdigital, PDF file(s)
225 0 $aCambridge bioethics and law
300   $aOpen Access.
300   $aTitle from publisher's bibliographic system (viewed on 05 Jul 2022).
311   $a1-108-48374-7 
327   $aAttending to identity -- Mapping the landscape -- Narrative self-constitution -- Bioinformation in embodied identity narratives -- Encounters with bioinformation : three examples -- Locating identity interests -- Responsibilities for disclosure -- Identity in the governance landscape.
330   $aIncreasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing - and not accessing - bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.
410  0$aCambridge Bioethics and Law.
606   $aMedical records$xAccess control$xPsychological aspects
606   $aPersonal information management$xPsychological aspects
606   $aPatients$xPsychology
606   $aIdentity (Psychology)
606   $aData privacy
606   $aMedical records$xLaw and legislation
610   $amedico-legal research
610   $agenetic data
610   $aprivacy protection
610   $amedical sociology
615  0$aMedical records$xAccess control$xPsychological aspects.
615  0$aPersonal information management$xPsychological aspects.
615  0$aPatients$xPsychology.
615  0$aIdentity (Psychology)
615  0$aData privacy.
615  0$aMedical records$xLaw and legislation.
676   $a610
686   $aLAW093000$2bisacsh
700   $aPostan$b Emily$f1973-$01253034
801  0$bUkCbUP
801  1$bUkCbUP
906   $aBOOK
912   $a9910585956003321
996   $aEmbodied narratives$92905133
997   $aUNINA