LEADER 05212nam 2200457 450 001 9910523003603321 005 20220818175552.0 010 $a3-030-82536-1 035 $a(MiAaPQ)EBC6812180 035 $a(Au-PeEL)EBL6812180 035 $a(CKB)19919393500041 035 $a(OCoLC)1287135395 035 $a(EXLCZ)9919919393500041 100 $a20220818d2022 uy 0 101 0 $aeng 135 $aurcnu|||||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 00$aBorn well $eprenatal genetics and the future of having children /$fMegan A. Allyse, Marsha Michie, editors 210 1$aCham, Switzerland :$cSpringer,$d[2022] 210 4$d©2022 215 $a1 online resource (145 pages) 225 1 $aInternational library of bioethics ;$vVolume 88 311 08$aPrint version: Allyse, Megan A. Born Well: Prenatal Genetics and the Future of Having Children Cham : Springer International Publishing AG,c2021 9783030825355 320 $aIncludes bibliographical references and index. 327 $aIntro -- Introduction -- Contents -- Part I Clinical Background -- 1 Women, Children, Families and the Translation of Genomics in Reproductive Medicine -- 1.1 Introduction -- 1.2 Genetic Testing in the Reproductive Context -- 1.3 Translating Genomics from the Bench to the Bedside -- 1.4 Conclusion -- References -- 2 Practicing Prenatal Medicine in a Genomic Future: How the Practice of Pediatrics May (Or May Not) Change with the Introduction of Widespread Prenatal Sequencing -- 2.1 Introduction -- 2.2 Drivers of Genomic Testing Implementation -- 2.3 Historical Review of Impact of Prenatal Genetic Testing -- 2.4 Effects of Next-Generation Genomic Technologies on Prenatal Diagnosis -- 2.5 Carrier Screening -- 2.6 Regional and Global Differences in Contextual Factors -- 2.7 Conclusion -- References -- Part II Voices of Disability -- 3 Eugenics or Not, Prenatal Genetic Testing's Common Issues Need to Be Addressed -- 3.1 Introduction -- 3.2 The Expressivist Critique of Prenatal Genetic Testing -- 3.3 Distinctions with the Eugenics Movement -- 3.4 Eugenic Distinctions and Modern Administration of Prenatal Genetic Testing -- 3.5 Eugenics Concerns and Common Ground -- 3.6 Conclusion -- 4 The Impact of Prenatal Screening on Disability Communities and the Meaning of Disability -- 4.1 Introduction -- 4.2 Attitudes of Disabled People to the Rise of Prenatal Screening -- 4.3 Attitudes of Families -- 4.4 Changing Responses to Disability as a Consequence of Screening -- 4.5 Conclusion -- References -- 5 An Expressivist Disability Critique of the Expansion of Prenatal Genomics -- 5.1 Introduction -- 5.2 Concerns About Consequences -- 5.2.1 Pathologization and Unintended Consequences -- 5.3 Expressing a Message: Claims and Examples -- 5.3.1 "Official" Messages -- 5.3.2 Statements Made by Professionals -- 5.3.3 The Message Received by People with Disabilities. 327 $a5.4 The Social Phenomenon of Prenatal Testing -- 5.5 Meaning and Medicalization -- 5.6 The Meaning of the Social Phenomenon of Prenatal Testing -- 5.6.1 Examples of Medicalization in Action -- 5.6.2 The Logic of Medicalization -- 5.7 Autonomy as an Outcome Rather than Termination -- 5.8 Conclusion -- References -- Part III Voices of Social Sciences and the Humanities -- 6 The Hypothetical Healthy Newborn -- 6.1 The Arc of Knowing -- 6.2 The Ethical Paradox of a Patient within a Patient -- 6.3 The Hypothetical Healthy Newborn as Normate Template -- 6.4 Two Ways of Knowing -- 6.5 Vitality -- 7 The Good and the Goal of Pre-conception and Pre-natal Genetic Testing from a Catholic Perspective -- 7.1 The Catholic Church's Historical Approaches to Health Care and Eugenics -- 7.2 Moral Approaches to Genetic Technologies -- 7.3 Conclusion -- 8 Pathways to Affluence: Socioeconomic Incentives in Prenatal Testing and Abortion -- 8.1 Introduction -- 8.2 Responsible Motherhood and Its Obligations -- 8.3 Indirect Costs -- 8.4 Public Views on Prenatal Testing and the Cost of Disability -- 8.5 Pathways to Affluence -- 8.6 Profiting From the Pathway -- 8.7 Beyond Down Syndrome -- References -- Part IV The Future? -- 9 An Intelligent Parents Guide to Prenatal Testing: Having a Well-Born Child Without Genomic Selection -- 9.1 Too Much Information, Too Many Choices -- 9.2 Who's Harmed by Not Selecting Against Disease and Disability? Is Anything Wrong with Not Selecting? -- 9.3 Are There Moral Reasons Against Prenatal Selectivity? -- 9.4 Who Bears the Cost of the Child You're Bearing? -- 9.5 Actionable Results: Therapeutic Testing -- 9.6 Conclusion -- Resources for Further Reading -- Index. 410 0$aInternational library of bioethics ;$vVolume 88. 606 $aGenetic engineering$xMoral and ethical aspects 615 0$aGenetic engineering$xMoral and ethical aspects. 676 $a174.957 702 $aAllyse$b Megan A. 702 $aMichie$b Marsha 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910523003603321 996 $aBorn Well$92590824 997 $aUNINA