LEADER 02641nam 22005654a 450 001 9910494584403321 005 20170815145224.0 010 $a1-282-62748-1 010 $a9786612627484 010 $a1-84545-887-7 035 $a(CKB)2560000000012195 035 $a(EBL)544418 035 $a(OCoLC)645101955 035 $a(SSID)ssj0000440044 035 $a(PQKBManifestationID)12190629 035 $a(PQKBTitleCode)TC0000440044 035 $a(PQKBWorkID)10471328 035 $a(PQKB)10638991 035 $a(MiAaPQ)EBC544418 035 $a(EXLCZ)992560000000012195 100 $a20081203d2009 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aNegotiating risk$b[electronic resource] $eBritish Pakistani experiences of genetics /$fAlison Shaw 210 $aNew York $cBerghahn Books$d2009 215 $a1 online resource (294 p.) 300 $aDescription based upon print version of record. 311 $a1-84545-548-7 320 $aIncludes bibliographical references (p. 253-274) and index. 327 $aMedical and public perceptions of consanguineous marriage and genetic risk -- Close kin marriages : some anthropological theory and European history -- British Pakistani cousin marriages : balancing marital risks -- Medical surveillance and diagnostic uncertainty -- Responding to reproductive risk -- Foretelling and managing infant death -- Genetic screening and the extended family -- Genetic risk in context. 330 $aDrawing on fieldwork with British Pakistani clients of a UK genetics service, this book explores the personal and social implications of a 'genetic diagnosis'. Through case material and comparative discussion, the book identifies practical ethical dilemmas raised by new genetic knowledge and shows how, while being shaped by culture, these issues also cross-cut differences of culture, religion and ethnicity. The book also demonstrates how identifying a population-level elevated 'risk' of genetic disorders in an ethnic minority population can reinforce existing social divisions and cultural ster 606 $aMedical genetics$zGreat Britain 606 $aConsanguinity$zGreat Britain 606 $aPakistanis$zGreat Britain 608 $aElectronic books. 615 0$aMedical genetics 615 0$aConsanguinity 615 0$aPakistanis 676 $a616.042 700 $aShaw$b Alison$f1957-$01028806 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910494584403321 996 $aNegotiating risk$92444945 997 $aUNINA