LEADER 05182nam 22007815 450 001 9910491025203321 005 20260216101206.0 010 $a981-16-1554-3 024 7 $a10.1007/978-981-16-1554-2 035 $a(CKB)4100000011979348 035 $a(MiAaPQ)EBC6676000 035 $a(Au-PeEL)EBL6676000 035 $a(OCoLC)1260347477 035 $a(PPN)26914546X 035 $a(DE-He213)978-981-16-1554-2 035 $a(EXLCZ)994100000011979348 100 $a20210708d2021 u| 0 101 0 $aeng 135 $aurcnu|||||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aBirth Defects in India $eEpidemiology and Public Health Implications /$fedited by Anita Kar 205 $a1st ed. 2021. 210 1$aSingapore :$cSpringer Nature Singapore :$cImprint: Springer,$d2021. 215 $a1 online resource (377 pages) 225 1 $aMedicine Series 311 08$a981-16-1553-5 327 $aBirth Defects : a Public Health Approach -- Some common birth defects -- Thalidomide : Understanding the responsibilities of a birth defects service -- Birth defects surveillance in India -- Rare Disease registries: A case study of the haemophilia registry in India -- Magnitude of congenital anomalies in India -- Magnitude of developmental disabilities in India -- Magnitude and characteristics of children with congenital disabilities in India -- Preventing congenital anomalies through existing maternal and child health services in India -- Neural tube defects and folate status in India -- Haemoglobinopathies : Genetic services in India -- Medical, rehabilitation and social welfare services for children with birth defects and developmental disabilities in India -- Early Childhood Intervention Services in India -- Birth defects stigma -- Parenting a child with a disability: A review of caregivers? needsin India and service implications -- Quality of life and psychosocial needs of caregivers of children with birth defects: A case study of haemophilia. 330 $aThis book presents the epidemiology of birth defects and their public health and social implications in India. As neglected childhood disorders, birth defects remain invisible in global maternal and child health dialogues. Birth defects services are emerging in India. This book approaches birth defects from a public health perspective, identifying the core functions of a birth defects service. Keeping in mind the complex task of providing multidisciplinary services for children with disabilities and complex medical conditions, the book examines the basic public health activities that have been put in place to address these conditions in India. The book describes birth defects surveillance and the challenges of acquiring accurate and timely data on birth defects against the background of India?s mixed health system. It discusses opportunities for prevention of birth defects and describes the structure and function of an emergent genetic service. It explores issuesrelated to an integrated service for children with special healthcare needs, such as screening, early intervention, and rehabilitation. Furthermore, it describes the impact of these conditions on caregivers, including birth defects stigma. This book not only addresses a knowledge gap in the field of public health in India, but also explores the broader issues of services for children with disabilities and disabling conditions in low and low-middle income settings where access to health care is not universal. Given the depth and breadth of its coverage, the book offers an essential resource for birth defects researchers, researchers in the field of maternal and child health, public health/ global health, disability researchers, and researchers from the fields of rehabilitation sciences, nursing and anthropology. This book will be a valuable read for social medicine/community medicine departments, global health courses, and public health schools inIndia and other low middle-income countries. . 410 0$aMedicine Series 606 $aPublic health 606 $aMedical policy 606 $aSocial service 606 $aBiotechnology 606 $aPublic Health 606 $aHealth Policy 606 $aSocial Care 606 $aBiotechnology 606 $aMalformacions$2thub 606 $aNaixement$2thub 606 $aNeonatologia$2thub 606 $aEpidemiologia$2thub 606 $aSalut pública$2thub 607 $aÍndia$2thub 608 $aLlibres electrònics$2thub 615 0$aPublic health. 615 0$aMedical policy. 615 0$aSocial service. 615 0$aBiotechnology. 615 14$aPublic Health. 615 24$aHealth Policy. 615 24$aSocial Care. 615 24$aBiotechnology. 615 7$aMalformacions 615 7$aNaixement 615 7$aNeonatologia 615 7$aEpidemiologia 615 7$aSalut pública 676 $a614.5992 702 $aKar$b Anita 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910491025203321 996 $aBirth Defects in India$92779802 997 $aUNINA