LEADER 05199oam 2200505 450 001 9910483401303321 005 20210523193835.0 010 $a981-15-5840-X 024 7 $a10.1007/978-981-15-5840-5 035 $a(CKB)4100000011610276 035 $a(MiAaPQ)EBC6414206 035 $a(DE-He213)978-981-15-5840-5 035 $a(PPN)259464678 035 $a(EXLCZ)994100000011610276 100 $a20210523d2021 uy 0 101 0 $aeng 135 $aurnn|008mamaa 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 00$aPublic policy in als/mnd care $ean international perspective /$fedited by Robert H. Blank, Jerome E. Kurent, David Oliver 205 $a1st ed. 2021. 210 1$aSingapore :$cSpringer,$d[2021] 210 4$d©2021 215 $a1 online resource (XXXI, 345 p. 5 illus.) 311 $a981-15-5839-6 327 $a1. Introduction to Public Policy of ALS/MND -- 2. Public Policy in MND Care: The Australian Perspective -- 3. Public Policy in ALS/MND Care: The Belgian Perspective -- 4. Amyotrophic Lateral Sclerosis in Brazil -- 5. Public Policy of ALS in Canada -- 6. Public Policy for Amyotrophic Lateral Sclerosis in China -- 7. German Perspective on ALS/MND Policy -- 8. Living and Dying with ALS/MND in India: Public Policy and Private Realities -- 9. The Experience of Amyotrophic Lateral Sclerosis in Ireland -- 10. Public Policy in ALS Care in Israel -- 11. Public Policy in ALS Care: The Italian Situation -- 12. ALS Policy: A Japanese Perspective -- 13. ALS Policy in Mexico -- 14. Public Policy of MND: A Nigerian Perspective -- 15. Public Policy of ALS: A Pakistani Perspective -- 16. Public Policy in ALS Care: The Polish Perspective -- 17. ALS Policy: A Russian Perspective -- 18. Public Policy in ALS/MND Care: South African Perspective -- 19. Public Policy of ALS: South Korea -- 20. Amyotrophic Lateral Sclerosis Care in Tunisia -- 21. Public Policy in MND Care: The United Kingdom -- 22. ALS Public Policy in the United States -- 23. Conclusions: What We Can Learn from the Country Perspectives. 330 $aAnyone interested in ALS/MND?physician, patient, or healthcare policy director ?should read this book and learn from it. ?Walter G. Bradley D.M., F.R.C.P., Professor and Chairman Emeritus, Miller School of Medicine, University of Miami, USA ?This book illustrates the inequities in the accessibility of quality neurological care existing globally and which forms a major target for redress by the World Federation of Neurology and the World Health Organisation.? ?William M Carroll AM, MBBS, MD, FRACP, FRCP(E), President, World Federation of Neurology This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions. Robert H. Blank, PhD, (University of Maryland) is an adjunct Professor of Political Science at the University of Canterbury in Christchurch, New Zealand. He has been a frequent guest professor at Aarhus University in Denmark and at National Taiwan University in Taipei, Taiwan, and a Research Scholar at New College Florida. Jerome E. Kurent received his MD from the University of Cincinnati College of Medicine and completed residencies in Neurology and Internal Medicine at the Johns Hopkins Hospital. He completed fellowships in neuromuscular diseases and electromyography at the National Institutes of Health, followed by a Geriatrics Medicine fellowship at Harvard where he also received his MPH. Dr. Kurent joined the Medical University of South Carolina faculty in 1984, and is Professor of Neurology, Medicine and Psychiatry and Behavioral Sciences. David Oliver, MD., recently retired as Consultant Physician in Palliative Medicine at the Wisdom Hospice in Rochester, Kent where he developed an integrated service over 32 years. He is an Honorary Professor at the Tizard Centre at the University of Kent, where he supervises students and is involved in research. 606 $aAmyotrophic lateral sclerosis$xTreatment$vGovernment policy 606 $aMedical policy 606 $aAmyotrophic lateral sclerosis$vGovernment policy 615 0$aAmyotrophic lateral sclerosis$xTreatment 615 0$aMedical policy. 615 0$aAmyotrophic lateral sclerosis 676 $a050 702 $aBlank$b Robert H. 702 $aKurent$b Jerome E. 702 $aOliver$b David 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bUtOrBLW 906 $aBOOK 912 $a9910483401303321 996 $aPublic policy in als$92810009 997 $aUNINA