LEADER 03931oam 2200769I 450 001 9910451441403321 005 20200520144314.0 010 $a0-203-35506-7 010 $a1-134-37335-X 010 $a1-280-05823-4 010 $a9786610058235 010 $a0-203-57792-2 024 7 $a10.4324/9780203577929 035 $a(CKB)1000000000250232 035 $a(EBL)200394 035 $a(OCoLC)304072273 035 $a(SSID)ssj0000297328 035 $a(PQKBManifestationID)11227979 035 $a(PQKBTitleCode)TC0000297328 035 $a(PQKBWorkID)10332439 035 $a(PQKB)11465510 035 $a(MiAaPQ)EBC200394 035 $a(Au-PeEL)EBL200394 035 $a(CaPaEBR)ebr10098900 035 $a(CaONFJC)MIL5823 035 $a(OCoLC)56550671 035 $a(EXLCZ)991000000000250232 100 $a20180331d2004 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 00$aGenetic databases $esocio-ethical issues in the collection and use of DNA /$fedited by Richard Tutton and Oonagh Corrigan 210 1$aLondon ;$aNew York :$cRoutledge,$d2004. 215 $a1 online resource (222 p.) 300 $aDescription based upon print version of record. 311 $a0-415-31679-0 311 $a0-415-31680-4 320 $aIncludes bibliographical references and index. 327 $aIntroduction : public participation in genetic databases / Richard Tutton and Oonagh Corrigan -- Person, property and gift : exploring languages of tissue donation to biomedical research / Richard Tutton -- Blood donation for genetic research : what can we learn from donors' narratives? / Helen Busby -- Levels and styles of participation in genetic databases : a case study of the North Cumbria Community Genetics Project / Erica Haimes and Michael Whong-Barr -- Informed consent : the contradictory ethical safeguards in pharmacogenetics / Oonagh Corrigan -- Ambiguous gifts : public anxiety, informed consent and biobanks / Klaus Hoeyer -- Abandoning informed consent : the case of genetic research in population collections / Jane Kaye -- Children's participation in genetic epidemiology : consent and control / Emma Williamson ... [et al.] -- 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? / Sue Weldon -- Tissue collection and the pharmaceutical industry : investigating corporate biobanks / Graham Lewis. 330 $aGenetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and legal studies, the contributors to this book challenge the prevailing orthodoxy of informed consent and explore the relationship between personal privacy and the public good. 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