LEADER 02873oam 22004574a 450 001 9910472625703321 005 20230621140804.0 035 $a(CKB)5590000000448135 035 $a(OCoLC)1247157958 035 $a(MdBmJHUP)muse98371 035 $a(oapen)https://directory.doabooks.org/handle/20.500.12854/64597 035 $a(oapen)doab64597 035 $a(EXLCZ)995590000000448135 100 $a20210311d2021 uy 0 101 0 $aeng 135 $aur|||||||nn|n 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aTesting Knowledge$eToward an Ecology of Diagnosis, Preceded by the Dingdingdong Manifesto /$fKatrin Solhdju, Alice Rivieres 210 $aBrooklyn, NY$cpunctum books$d2021 210 1$aSanta Barbara :$cPunctum Books,$d2021. 210 4$d©2021. 215 $a1 online resource 311 08$a1-953035-45-0 311 08$a1-953035-46-9 330 $a"This volume presents the collective adventure of Dingdingdong, the Institute for the Co-production of Knowledge about Huntington?s Disease, founded in 2012 between Paris and Brussels. Katrin Solhdju?s Testing Knowledge: Toward an Ecology of Diagnosis pursues the question of taming the violence of the new species of medical foreknowledge represented by genetic testing. Adopting historical and epistemological perspectives on diagnostic situations, including observations from anthropological field research, speculative storytelling, and ancient oracles, Testing Knowledge proposes a new ecology of predictive diagnostic gestures, which potentially concern us all. Testing Knowledge is preceded by the Dingdingdong collective?s Manifesto (2013), which tells the story of the young Alice Rivières, who in 2006 took the presymptomatic, genetic test, foretelling her that she will eventually develop Huntington?s. Her first-person account of the revelation of her test results, which she experienced as an act of poisoning or cursing, pulls the reader into the manifold ethical, psychological, and existential issues inherent to medical predictions. Testing Knowledge is also preceded by a foreword from Alice Wexler, author of Mapping Fate: A Memoir of Family, Risk, and Genetic Research, and is followed by an afterword by philosopher Isabelle Stengers." 606 $aDoctor/patient relationship$2bicssc 606 $aNeurology & clinical neurophysiology$2bicssc 608 $aElectronic books. 610 $aepistemology, Huntington's disease, medicine, medical ecology, patient empowerment 615 7$aDoctor/patient relationship 615 7$aNeurology & clinical neurophysiology 700 $aSolhdju$b Katrin$0912260 702 $aRivieres$b Alice 801 0$bMdBmJHUP 801 1$bMdBmJHUP 906 $aBOOK 912 $a9910472625703321 996 $aTesting Knowledge$92042623 997 $aUNINA