LEADER 02740nam 22005291 450 001 9910466618503321 005 20210511200555.0 010 $a93-5328-766-9 010 $a93-5280-775-8 010 $a93-5280-776-6 035 $a(CKB)4100000005879483 035 $a(MiAaPQ)EBC5494715 035 $a(Au-PeEL)EBL5494715 035 $a(CaPaEBR)ebr11601700 035 $a(OCoLC)1049567926 035 $a(CaToSAGE)SAGE000009117 035 $a(EXLCZ)994100000005879483 100 $a20200124e20182018 fy| 0 101 0 $aeng 135 $aurcnu|||||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aDisability and care work $estate, society and invisible lives /$fUpali Chakravarti 205 $a1st edition. 210 1$aLos Angeles, CA :$cSAGE Publications, Inc.,$d2018. 215 $a1 online resource (237 pages) 311 $a93-5388-062-9 311 $a93-5280-774-X 320 $aIncludes bibliographical references and index. 330 8 $aDisability and Care Work: State, Society and Invisible Lives explores the lived reality of children with disabilities and those involved in parenting and caring for them. It discusses the extent to which the needs of the disabled and their caregivers have been met by health and welfare initiatives, and finds substantial gaps. The book describes vividly how the families of children with disability negotiate the uncertain journey of identifying their child's disability, obtaining a diagnosis, accessing appropriate services and their ongoing efforts to reconcile with and recognise their child's unique situation and mode of being. It critically examines the gendered dimensions involved in caregiving, the role of the state and civil society, and the legal and institutional frameworks in place. The book calls for inclusion of disability treatment at the primary care level, enhanced technology use for diagnosis and information, coordinated national level disability care policy formulation and organised action by the disabled and their caregivers to ensure their needs are addressed by the state and society. 606 $aPeople with disabilities$xCare 606 $aPeople with disabilities$xSocial conditions 606 $aDisabilities$xSocial aspects 608 $aElectronic books. 615 0$aPeople with disabilities$xCare. 615 0$aPeople with disabilities$xSocial conditions. 615 0$aDisabilities$xSocial aspects. 676 $a362.4/048 700 $aChakravarti$b Upali$01049120 801 0$bCaToSAGE 801 1$bCaToSAGE 801 2$bUtOrBLW 906 $aBOOK 912 $a9910466618503321 996 $aDisability and care work$92477838 997 $aUNINA