LEADER 04565oam 2200649I 450 001 9910463969603321 005 20170821191715.0 010 $a1-315-80416-6 010 $a1-317-77371-3 010 $a1-317-77372-1 024 7 $a10.4324/9781315804163 035 $a(CKB)2670000000529145 035 $a(EBL)1639240 035 $a(SSID)ssj0001130764 035 $a(PQKBManifestationID)12533500 035 $a(PQKBTitleCode)TC0001130764 035 $a(PQKBWorkID)11128578 035 $a(PQKB)11247331 035 $a(OCoLC)878148655 035 $a(MiAaPQ)EBC1639240 035 $a(OCoLC)897458482 035 $a(EXLCZ)992670000000529145 100 $a20180706e20131988 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 00$aDying and disabled children $edealing with loss and grief /$fHarold M. Dick. [et al.], editors 210 1$aNew York :$cRoutledge,$d2013. 215 $a1 online resource (166 p.) 300 $aFirst published 1988 by The Haworth Press. 311 $a0-86656-759-3 320 $aIncludes bibliographical references. 327 $aCover; Half Title; Title Page; Copyright Page; Table of Contents; About the Editors; I. Loss of A Body Part; Traumatic Amputation in Childhood: Functional and Psychosocial Aspects; Functional Aspects; Psychosocial Aspects; Summary; Emotional Reactions to the Loss or a Body Part; Reaction or Children and Adolescents to Amputation; Impact; Retreat; Acknowledgment; Reconstruction; Amputation and the Reconstruction or Congenital Lesions; II. Loss of A Perfect Child; Loss or the ""Perfect"" Child and Ethical Decision Making: Miguel's Story; III. Chronic Loss and Disabilily; Seeking Significance 327 $aFinding SignificancePediatric Orthopedics: Dealing with Loss and Chronic Sorrow; Jerry; Peter; Review of the Literature; Application to Clinical Practice; The Impact of the Disabled Child on the Family; Some Aspects of Psychosocial Sequelae to Treatment of Scoliosis in Adolescent Girls; Responses to Diagnosis; Treatment; IV. Dealing With Life·Threatening Disease; Care of the Dying Adolescent and the Bereaved Family; Stresses Faced by the Family; Communication; Adolescents' Needs; Family, School, and Community; Teen Support Programs; Parent Support Groups 327 $aAdolescents in the Final Stages of LifeDeath and Bereavement; Depression, Denial, and Withdrawal in Mothers of Seriously Ill Children and Adolescents; Sample and Observation of Behavior; Therapeutic Intervention; Suffering by Children: Some Observations of Brave Children and Their Families at a Children's Hospital; The Needs of Sarcoma Patients from Diagnosis Through Follow-Up; Treatment of Fractures in Children with Malignancies; Advantage of Early Spinal Stabilization and Fusion in Patients with Duchenne Muscular Dystrophy; Methods; Results; Discussion; Psychosocial Aspects of Chemotherapy 327 $aThe Ultimate Loss: The Dying ChildV. Bereavement; Communication Among Children, Parents, and Funeral Directors; Talking to Children About Death; Children's Reactions to Death; Children and Funerals; Parental Grief Over the Death of a Child; Couples Mourn as Individuals; Mourning Process; History and the Road to Recovery 330 $aIn this sensitive and compassionate look at terminally ill and disabled children, professionals from the medical community examine the stresses faced by their parents and siblings. They address the crucial element of communication--within a family and between health care providers and family members--in dealing with a child's serious illness. Ethical decision making, learning to recognize the child's suffering, and talking to children about death are honestly and clearly discussed. Experts offer direct interventions to help family members through the grieving process once a child has died. 606 $aChildren with disabilities$xPsychology 606 $aTerminally ill children$xPsychology 606 $aSick children$xFamily relationships 606 $aChildren and death 608 $aElectronic books. 615 0$aChildren with disabilities$xPsychology. 615 0$aTerminally ill children$xPsychology. 615 0$aSick children$xFamily relationships. 615 0$aChildren and death. 676 $a155.9/37 701 $aDick$b Harold M$0940375 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910463969603321 996 $aDying and disabled children$92120673 997 $aUNINA