LEADER 05715nam 22007334a 450 001 9910462987003321 005 20200520144314.0 010 $a1-934559-06-7 010 $a9786611974879 010 $a1-281-97487-0 010 $a1-61705-083-0 035 $a(CKB)2670000000317018 035 $a(EBL)1160343 035 $a(SSID)ssj0000102761 035 $a(PQKBManifestationID)11622508 035 $a(PQKBTitleCode)TC0000102761 035 $a(PQKBWorkID)10060648 035 $a(PQKB)11171198 035 $a(SSID)ssj0000782626 035 $a(PQKBManifestationID)12344171 035 $a(PQKBTitleCode)TC0000782626 035 $a(PQKBWorkID)10747097 035 $a(PQKB)11454781 035 $a(MiAaPQ)EBC289750 035 $a(MiAaPQ)EBC1160343 035 $a(Au-PeEL)EBL289750 035 $a(CaPaEBR)ebr10118498 035 $a(CaONFJC)MIL197487 035 $a(OCoLC)437177207 035 $a(EXLCZ)992670000000317018 100 $a20040812d2005 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aAmyotrophic lateral sclerosis$b[electronic resource] /$fRobert G. Miller, Deborah Gelinas, Patricia O'Connor 210 $aNew York $cDemos Medical Pub.$dc2005 215 $a1 online resource (280 p.) 300 $aDescription based upon print version of record. 311 $a1-932603-06-9 311 $a1-936287-43-9 320 $aIncludes bibliographical references and index. 327 $aCover; Title; Copyright; Contents; Preface; Contributors; Chapter 1: What Is ALS?; Definitions; Motor Neuron System and Motor Neurons; ALS and Frontotemporal Dementia; ALS Lookalikes: Differential Diagnosis; Sporadic, Familial, and Western Pacific ALS; Familial ALS; Western Pacific ALS/PDC; Clinical Phenomenology: Onset and Spread; Pathophysiology at Tissue and Cellular Level; Descriptive Epidemiology of Sporadic ALS/MND; Environmental Risk Factors: Analytic Epidemiology; ALS as One of the System Degeneration Diseases; References; Chapter 2: Neurological Assessment and Medical Management 327 $aWhen to Suspect ALSHow to Diagnose ALS; ALS Mimics; Breaking the News; Assessments That are Important for Patient Care; Predicting Progression; Caring for Patients with ALS; Managing Common Symptoms; Pros and Cons of Specific ALS Therapies; Alternative and Off-Label Treatments; Resources Available to ALS Patients and Their Families; References; Chapter 3: Nursing: Care and Coordination; A Lasting Impression: The Day of Diagnosis; Coordination of the Multidisciplinary Clinic; The Nurse as the Glue that Holds It All Together; Preparing for Clinic Day 327 $aEssential Patient Evaluations at Every ClinicKeeping the Day Organized; Communication Between Team Members on Clinic Day; Take-Home Messages for Patients; Post-Clinic Meeting; A Little Bit of Everything: Essentials of Each Discipline That the Nurse Must Know; Social Work; Speech and Swallowing; Patient Education; Special Issues; Resources for Professional Development; Visiting Established ALS Centers; Research Opportunities for Patients; Caring for the Caregiver; References; Chapter 4: Speech and Swallowing Interventions; Speech Features of ALS; Motor Speech/Dysarthria; Voice 327 $aSpeaking Rate and IntelligibilityCommunication Effectiveness; Assessments; Dysarthria; Voice; Intelligibility; Communication Effectiveness; Speech Staging; Interventions; Compensatory Strategies; Voice Banking; Timing Referrals for AAC; Patient and Caregiver Education; Swallowing Features of ALS; Oral Phase Swallowing; Pharyngeal Phase Swallowing; Sensory Differences for ALS; Swallowing Assessment; Oral Phase Swallowing; Pharyngeal Phase Swallowing; Time to Consume Meals; MBSS/FEES; Timing Referrals for Percutaneous Endoscopic Gastrostomy (PEG); Interventions; Exercises; Swallowing Safety 327 $aConserving EnergyManaging Secretions; References; Chapter 5: Nutrition and Nutrition Therapy; A Well-Balanced Diet; Nutritional Challenges in ALS; Integrated Approach to Nutritional Management in ALS; Diet Modification and Eating Strategies; Problems with Self Feeding; Chewing and Swallowing Difficulties; Diet Modification to Increase Calories; Hydration; Constipation; Determine if a Patient Is in Positive or Negative Energy Balance; Recommending a G-Tube as an Alternative Route for Nutritional Intake if EI < TDEE; Risk Stratification for G-Tube Insertion Based on %FVC; Dietary Supplements 327 $aResources for People with ALS and Caregivers 330 $aAmyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians is intended as a practical reference for clinicians caring for ALS patients, and will bring together the collective wisdom of those at the forefront of patient-oriented research and practice. This will be an official project of the ALS Research Group (founded by Dr. Mitsumoto and currently headed by Dr. Bedlack), and provides both an evidence-based and experience-based guide to multidisciplinary ALS care. The book will begin with a brief review of current concepts of ALS including diagnostic criteria, genetic and sporadic subty 606 $aAmyotrophic lateral sclerosis$vPopular works 608 $aElectronic books. 615 0$aAmyotrophic lateral sclerosis 676 $a616.8/3 700 $aMiller$b Robert G$g(Robert Gordon),$f1942-$0890345 701 $aGelinas$b Deborah F$g(Deborah Faith),$f1956-$0890346 701 $aO'Connor$b Patricia$f1954-$0890347 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910462987003321 996 $aAmyotrophic lateral sclerosis$91988940 997 $aUNINA