LEADER 03350oam 2200673I 450 001 9910461302003321 005 20200520144314.0 010 $a1-283-45813-6 010 $a9786613458131 010 $a1-134-02629-3 010 $a0-203-89138-4 024 7 $a10.4324/9780203891384 035 $a(CKB)2670000000148152 035 $a(EBL)957194 035 $a(OCoLC)798532826 035 $a(SSID)ssj0000652776 035 $a(PQKBManifestationID)11380750 035 $a(PQKBTitleCode)TC0000652776 035 $a(PQKBWorkID)10642062 035 $a(PQKB)11153986 035 $a(MiAaPQ)EBC957194 035 $a(Au-PeEL)EBL957194 035 $a(CaPaEBR)ebr10533774 035 $a(CaONFJC)MIL345813 035 $a(OCoLC)785431758 035 $a(EXLCZ)992670000000148152 100 $a20180706d2011 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aGenetic testing $eaccounts of autonomy, responsibility and blame /$fMichael Arribas-Ayllon, Srikant Sarangi and Angus Clarke 210 1$aAbingdon, Oxon :$cRoutledge,$d2011. 215 $a1 online resource (219 p.) 225 1 $aGenetics and society 300 $aDescription based upon print version of record. 311 $a1-138-01996-8 311 $a0-415-47443-4 320 $aIncludes bibliographical references and index. 327 $aFront Cover; Genetic Testing; Copyright Page; Contents; Acknowledgements; List of abbreviations; 1. Introduction; 2. Genetic testing: technology in context; 3. Neo-liberalism and the new genetics; 4. Rhetorical discourse analysis; 5. Personal genomics and the media; 6. Family accounts of genetic responsibility; 7. Accounts of genetic testing in the clinic; 8. Professional accounts of ethical challenges in the prenatalgenetics clinic; 9. Conclusion; Appendix: transcription conventions; Notes; Bibliography; Index 330 $a"Advances in molecular genetics have led to the increasing availability of genetic testing for a variety of inherited disorders. While this new knowledge presents many obvious health benefits to prospective individuals and their families it also raises complex ethical and moral dilemmas for families as well as genetic professionals. This book explores the ways in which genetic testing generates not only probabilities of potential futures, but also enjoys new forms of social, individual and professional responsibility. Concerns about confidentiality and informed consent involving children, the assessment of competence and maturity, the ability to engage in shared decision-making through acts of disclosure and choice, are just some of the issues that are examined in detail"--Provided by publisher. 410 0$aGenetics and society. 606 $aGenetic screening$xMoral and ethical aspects 606 $aMedical genetics 608 $aElectronic books. 615 0$aGenetic screening$xMoral and ethical aspects. 615 0$aMedical genetics. 676 $a174.2/96042 700 $aArribas-Ayllon$b Michael.$0907885 701 $aClarke$b Angus$f1954-$0907886 701 $aSarangi$b Srikant$f1956-$0262168 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910461302003321 996 $aGenetic testing$92030760 997 $aUNINA