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010   $a9786613571854
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101 0 $aeng
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181   $ctxt$2rdacontent
182   $cc$2rdamedia
183   $acr$2rdacarrier
200 10$aGenetic data and the law $ea critical perspective on privacy protection /$fMark Taylor$b[electronic resource]
210  1$aCambridge :$cCambridge University Press,$d2012.
215   $a1 online resource (xiii, 232 pages) $cdigital, PDF file(s)
225 1 $aCambridge bioethics and law ;$v16
300   $aTitle from publisher's bibliographic system (viewed on 05 Oct 2015).
311   $a1-107-00711-9 
320   $aIncludes bibliographical references and index.
327   $aIntroduction -- Privacy -- Genetic data -- The law -- Data in common -- Anonymity -- Human tissue -- Genetic discrimination -- Potential, promise and possibility.
330   $aResearch using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.
410  0$aCambridge bioethics and law ;$v16.
517 3 $aGenetic Data & the Law
606   $aMedical genetics$xLaw and legislation
606   $aMedical records$xAccess control
606   $aGenetic engineering$xLaw and legislation
606   $aBiotechnology$xLaw and legislation
606   $aHuman chromosome abnormalities$xDiagnosis$xLaw and legislation
606   $aHuman genetics$xGovernment policy
606   $aPrivacy, Right of
606   $aData protection$xLaw and legislation
615  0$aMedical genetics$xLaw and legislation.
615  0$aMedical records$xAccess control.
615  0$aGenetic engineering$xLaw and legislation.
615  0$aBiotechnology$xLaw and legislation.
615  0$aHuman chromosome abnormalities$xDiagnosis$xLaw and legislation.
615  0$aHuman genetics$xGovernment policy.
615  0$aPrivacy, Right of.
615  0$aData protection$xLaw and legislation.
676   $a344.04/196
700   $aTaylor$b Mark$f1973 March 26-$01026676
801  0$bUkCbUP
801  1$bUkCbUP
906   $aBOOK
912   $a9910461223503321
996   $aGenetic data and the law$92441716
997   $aUNINA