LEADER 04530nam 2200625 450 001 9910460777703321 005 20210422155823.0 010 $a1-84540-831-4 010 $a1-84540-830-6 035 $a(CKB)3710000000451420 035 $a(EBL)2110941 035 $a(SSID)ssj0001557834 035 $a(PQKBManifestationID)16183589 035 $a(PQKBTitleCode)TC0001557834 035 $a(PQKBWorkID)14819511 035 $a(PQKB)10101029 035 $a(MiAaPQ)EBC2110941 035 $a(Au-PeEL)EBL2110941 035 $a(CaPaEBR)ebr11081748 035 $a(CaONFJC)MIL817165 035 $a(OCoLC)915311688 035 $a(EXLCZ)993710000000451420 100 $a20150808h20152015 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 14$aThe decision trap $egenetic education and its social consequences /$fSilja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce 210 1$aExeter, England :$cImprint Academic,$d2015. 210 2$aLa Vergne, Tennessee :$cIngram Book Company,$d[date of distribution not identified] 210 4$dİ2015 215 $a1 online resource (191 p.) 300 $aDescription based upon print version of record. 311 $a1-84540-776-8 320 $aIncludes bibliographical references. 327 $aCover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics 327 $a2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information 327 $a3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management 327 $a3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available 330 $aThe Decision Trap questions a dogma of our time: the assumption that genetic education empowers citizens and increases their autonomy. It argues that professional instructions about genes, genetic risks, and genetic test options convey a genetic worldview which destroys self-confidence and makes clients dependent on genetic experts and technologies. Part one of the book introduces the reader to the idea of genetic education. It clarifies the notion of the ""gene"" as it is commonly understood,... 606 $aGenetic counseling$xDecision making 608 $aElectronic books. 615 0$aGenetic counseling$xDecision making. 676 $a174.296042 700 $aSamerski$b Silja$0857911 702 $aRothman$b Barbara Katz 702 $aJoyce$b Nancy 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910460777703321 996 $aThe decision trap$91915517 997 $aUNINA