LEADER 08135nam 22020775 450 001 9910459625503321 005 20210108172134.0 010 $a1-283-27749-2 010 $a9786613277497 010 $a0-520-94823-8 024 7 $a10.1525/9780520948235 035 $a(CKB)2670000000066533 035 $a(EBL)631047 035 $a(OCoLC)699475041 035 $a(SSID)ssj0000471947 035 $a(PQKBManifestationID)11331383 035 $a(PQKBTitleCode)TC0000471947 035 $a(PQKBWorkID)10429620 035 $a(PQKB)11635298 035 $a(DE-B1597)518992 035 $a(OCoLC)703172269 035 $a(DE-B1597)9780520948235 035 $a(MiAaPQ)EBC631047 035 $a(EXLCZ)992670000000066533 100 $a20200424h20102010 fg 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 14$aThe Paradox of Hope $eJourneys through a Clinical Borderland /$fCheryl Mattingly 210 1$aBerkeley, CA :$cUniversity of California Press,$d[2010] 210 4$dİ2010 215 $a1 online resource (286 p.) 300 $aDescription based upon print version of record. 311 $a0-520-26734-6 327 $tFrontmatter --$tContents --$tPrologue --$tAcknowledgments --$t1. The Lobby --$t2. Narrative Matters --$t3. Border Trouble --$t4. Widening the Gap: The Creation of a Conflict Drama --$t5. Plotting Hope --$t6. Daydreaming: Captain Hook Gets Speech Therapy --$t7. Fleeting Hope --$t8. Narrative Phenomenology and the Practice of Hope --$tNotes --$tReferences --$tIndex 330 $aGrounded in intimate moments of family life in and out of hospitals, this book explores the hope that inspires us to try to create lives worth living, even when no cure is in sight. The Paradox of Hope focuses on a group of African American families in a multicultural urban environment, many of them poor and all of them with children who have been diagnosed with serious chronic medical conditions. Cheryl Mattingly proposes a narrative phenomenology of practice as she explores case stories in this highly readable study. Depicting the multicultural urban hospital as a border zone where race, class, and chronic disease intersect, this theoretically innovative study illuminates communities of care that span both clinic and family and shows how hope is created as an everyday reality amid trying circumstances. 606 $aAfrican Americans - United States 606 $aAfrican Americans --Medical care --United States 606 $aChild - United States 606 $aChildren - United States 606 $aChronic Disease - United States 606 $aChronically ill children --Medical care --United States 606 $aMedical anthropology - United States 606 $aMedical anthropology --United States 606 $aMedicla personnel and patient --United States 606 $aPoor - Medical care - United States 606 $aPoor --Medical care --United States 606 $aPoverty - United States 606 $aProfessional-Family Relations - United States 606 $aSocial medicine - United States 606 $aSocial Medicine --United States 606 $aStress, Psychological - psychology - United States 606 $aAfrican Americans$xMedical care$zUnited States 606 $aChronically ill children$xMedical care$zUnited States 606 $aMedical anthropology$xMedical care$zUnited States 606 $aPoor$zUnited States 606 $aSocial medicine$zUnited States 606 $aMedical personnel and patient$zUnited States 606 $aData Collection 606 $aAnthropology 606 $aDisease Attributes 606 $aInterpersonal Relations 606 $aAge Groups 606 $aSocioeconomic Factors 606 $aEthnic Groups 606 $aCommunication 606 $aSocial Problems 606 $aAfrican Continental Ancestry Group 606 $aSociology 606 $aContinental Population Groups 606 $aPathologic Processes 606 $aPersons 606 $aEpidemiologic Methods 606 $aPsychology, Social 606 $aHealth Care Evaluation Mechanisms 606 $aInformation Science 606 $aSocial Sciences 606 $aPopulation Groups 606 $aPopulation Characteristics 606 $aBehavior 606 $aPoverty 606 $aChild 606 $aNarration 606 $aAnthropology, Cultural 606 $aChronic Disease 606 $aProfessional-Family Relations 606 $aAfrican Americans 606 $aBehavior and Behavior Mechanisms 606 $aQuality of Health Care 606 $aInvestigative Techniques 606 $aPathological Conditions, Signs and Symptoms 606 $aPublic Health 606 $aHealth Care 606 $aHealth Care Quality, Access, and Evaluation 606 $aEnvironment and Public Health 606 $aDiseases 606 $aPublic Health$2HILCC 606 $aHealth & Biological Sciences$2HILCC 606 $aEthnic Minorities & Public Health$2HILCC 607 $aNorth America 607 $aAmericas 607 $aUnited States 608 $aElectronic books. 615 4$aAfrican Americans - United States. 615 4$aAfrican Americans --Medical care --United States. 615 4$aChild - United States. 615 4$aChildren - United States. 615 4$aChronic Disease - United States. 615 4$aChronically ill children --Medical care --United States. 615 4$aMedical anthropology - United States. 615 4$aMedical anthropology --United States. 615 4$aMedicla personnel and patient --United States. 615 4$aPoor - Medical care - United States. 615 4$aPoor --Medical care --United States. 615 4$aPoverty - United States. 615 4$aProfessional-Family Relations - United States. 615 4$aSocial medicine - United States. 615 4$aSocial Medicine --United States. 615 4$aStress, Psychological - psychology - United States. 615 0$aAfrican Americans$xMedical care 615 0$aChronically ill children$xMedical care 615 0$aMedical anthropology$xMedical care 615 0$aPoor 615 0$aSocial medicine 615 0$aMedical personnel and patient 615 2$aData Collection 615 2$aAnthropology 615 2$aDisease Attributes 615 2$aInterpersonal Relations 615 2$aAge Groups 615 2$aSocioeconomic Factors 615 2$aEthnic Groups 615 2$aCommunication 615 2$aSocial Problems 615 2$aAfrican Continental Ancestry Group 615 2$aSociology 615 2$aContinental Population Groups 615 2$aPathologic Processes 615 2$aPersons 615 2$aEpidemiologic Methods 615 2$aPsychology, Social 615 2$aHealth Care Evaluation Mechanisms 615 2$aInformation Science 615 2$aSocial Sciences 615 2$aPopulation Groups 615 2$aPopulation Characteristics 615 2$aBehavior 615 2$aPoverty 615 2$aChild 615 2$aNarration 615 2$aAnthropology, Cultural 615 2$aChronic Disease 615 2$aProfessional-Family Relations 615 2$aAfrican Americans 615 2$aBehavior and Behavior Mechanisms 615 2$aQuality of Health Care 615 2$aInvestigative Techniques 615 2$aPathological Conditions, Signs and Symptoms 615 2$aPublic Health 615 2$aHealth Care 615 2$aHealth Care Quality, Access, and Evaluation 615 2$aEnvironment and Public Health 615 2$aDiseases 615 7$aPublic Health 615 7$aHealth & Biological Sciences 615 7$aEthnic Minorities & Public Health 676 $a362.198 92008996073 700 $aMattingly$b Cheryl$4aut$4http://id.loc.gov/vocabulary/relators/aut$01049498 801 0$bDE-B1597 801 1$bDE-B1597 906 $aBOOK 912 $a9910459625503321 996 $aThe Paradox of Hope$92478561 997 $aUNINA