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010   $a1-281-83410-6
010   $a9786611834104
010   $a0-7546-8928-X
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035   $a(EBL)438280
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100   $a20080125d2008      uy             0
101 0 $aeng
135   $aur|n|---|||||
181   $ctxt
182   $cc
183   $acr
200 00$aEthical issues in governing biobanks$b[electronic resource] $eglobal perspectives /$fedited by Bernice Elger ... [et al.]
210   $aAldershot, England ;$aBurlington, VT $cAshgate Pub. Ltd.$dc2008
215   $a1 online resource (268 p.)
300   $aDescription based upon print version of record.
311   $a0-7546-7255-7 
320   $aIncludes bibliographical references and index.
327   $aCover; Contents; Notes on the Contributors; Acknowledgements; 1 Introduction: Biobanks, Genomics, and Research-A Nightmare for Public Policy Makers?; PART I: RESEARCH BIOBANKS: CURRENT STATUS AND DEBATES; PART II: CONSENSUS AND CONTROVERSIES AMONG INTERNATIONAL EXPERTS CONCERNING ISSUES RAISED BY GENETIC DATABASES; PART III: SHAPING THE FUTURE LEGAL AND ETHICAL DEVELOPMENT OF GENETIC DATABASES; Index
330   $aPopulation genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks.
606   $aHuman genetics$xDatabases$xLaw and legislation
606   $aHuman genetics$xDatabases$xMoral and ethical aspects
608   $aElectronic books.
615  0$aHuman genetics$xDatabases$xLaw and legislation.
615  0$aHuman genetics$xDatabases$xMoral and ethical aspects.
676   $a174.2
701   $aElger$b Bernice$0960281
801  0$bMiAaPQ
801  1$bMiAaPQ
801  2$bMiAaPQ
906   $aBOOK
912   $a9910454434403321
996   $aEthical issues in governing biobanks$92264109
997   $aUNINA