LEADER 04637nam 2200661 a 450 001 9910451989303321 005 20200520144314.0 010 $a1-282-09894-2 010 $a9786612098949 010 $a0-262-26874-4 010 $a1-4294-9240-6 035 $a(CKB)1000000000477073 035 $a(SSID)ssj0000194205 035 $a(PQKBManifestationID)11197156 035 $a(PQKBTitleCode)TC0000194205 035 $a(PQKBWorkID)10231183 035 $a(PQKB)11459974 035 $a(MiAaPQ)EBC3338721 035 $a(OCoLC)170968020$z(OCoLC)648325720$z(OCoLC)764480124$z(OCoLC)923250498$z(OCoLC)961524868$z(OCoLC)962669959 035 $a(OCoLC-P)170968020 035 $a(MaCbMITP)7383 035 $a(Au-PeEL)EBL3338721 035 $a(CaPaEBR)ebr10190466 035 $a(CaONFJC)MIL209894 035 $a(OCoLC)923250498 035 $a(EXLCZ)991000000000477073 100 $a20061006d2007 uy 0 101 0 $aeng 135 $aurcn||||||||| 181 $ctxt 182 $cc 183 $acr 200 10$aLooking within$b[electronic resource] $ea sociocultural examination of fetoscopy /$fDeborah Blizzard 210 $aCambridge, Mass. $cMIT Press$dc2007 215 $axiv, 253 p 225 1 $aBasic bioethics 300 $aBibliographic Level Mode of Issuance: Monograph 311 $a0-262-02616-3 320 $aIncludes bibliographical references (p. [237]-247) and index. 327 $aFetoscopy as lived experience : a closer look -- Why fetoscopy? Why now?: an ethnography of a medical technology and the emotions that fuel it -- Fetoscopy in cultural context : fetal politics, reproductive choice, religious experiences, and maternal blame -- How to create a fetoscopy collective : define the risks and find participants -- Fetoscopy and the single fetus : diagnostic embryofetoscopy, bladder obstruction, amniotic band syndrome, and the technological fix -- Ligation and twins : making and choosing twins in high-risk pregnancy -- Loss and success : social networks and constructing an outcome -- Final thoughts on fetoscopy. 330 $aAn ethnographic study of fetoscopy that considers both the broader cultural context of this high-risk obstetrical procedure and the patient's individual experience.In Looking Within, Deborah Blizzard examines the high-risk in utero surgery known as fetoscopy, considering it as both cutting-edge medical technology and as a sociocultural construction of patients, their social networks, and medical providers. She looks at the way individual experiences shape these procedures and how fetoscopy affects individuals (both patients and providers) on a personal, emotional level. Based on an eleven-month ethnographic study of the fetoscopy practice at a community-based hospital and further interviews with former patients, Looking Within offers a vivid picture of the sometimes conflicted, often desperate, and always emotional lives of those undergoing fetoscopy, and challenges current assumptions about normal and appropriate pregnancy experiences. To convey the complex reality of fetoscopy, Blizzard draws from the experiences of the real patients she interviewed for the book to present the fictional case of Melinda and Joe, taking them through the entire process, from diagnosis to decision to outcome. She then discusses the emergence of fetoscopy as an accepted form of high-risk obstetrical care, how fetoscopy programs are established at hospitals, and why otherwise healthy women consent to surgery. Blizzard examines the use of fetoscopy in single-fetus and in twin pregnancies, looking at how religion, culture, society, and medical science inform any understanding of who or what is in utero (a baby? a tumor? a mass?). She also discusses definitions of loss and success, and the narratives patients and their social networks construct to make sense of them. Looking Within will help physicians and nurses improve the development and delivery of fetoscopy procedures, help patients understand this new technology, and help scholars evaluate fetoscopy's bioethical, social, and cultural implications. 410 0$aBasic bioethics. 606 $aFetoscopy$xSocial aspects 606 $aSocial medicine 606 $aPrenatal diagnosis 608 $aElectronic books. 615 0$aFetoscopy$xSocial aspects. 615 0$aSocial medicine. 615 0$aPrenatal diagnosis. 676 $a618.3/2075 700 $aBlizzard$b Deborah$0940191 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910451989303321 996 $aLooking within$92120032 997 $aUNINA