LEADER 02918nam 2200613Ia 450 001 9910451274703321 005 20200520144314.0 010 $a1-281-10540-6 010 $a9786611105402 010 $a1-84642-630-8 010 $a1-4356-0305-2 035 $a(CKB)1000000000410432 035 $a(EBL)334121 035 $a(OCoLC)191925933 035 $a(SSID)ssj0000190676 035 $a(PQKBManifestationID)11215647 035 $a(PQKBTitleCode)TC0000190676 035 $a(PQKBWorkID)10180337 035 $a(PQKB)11520142 035 $a(MiAaPQ)EBC334121 035 $a(Au-PeEL)EBL334121 035 $a(CaPaEBR)ebr10196747 035 $a(CaONFJC)MIL110540 035 $a(OCoLC)175292183 035 $a(EXLCZ)991000000000410432 100 $a20061026d2007 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aLearning to live with Huntington's disease$b[electronic resource] $eone family's story /$fSandy Sulaiman 210 $aLondon ;$aPhiladelphia $cJessica Kingsley Publishers$d2007 215 $a1 online resource (178 p.) 300 $aDescription based upon print version of record. 311 $a1-84985-716-4 311 $a1-84310-487-3 327 $aCover; Title Page; Contents; THANK-YOUS; INTRODUCTION: 'THE MOST CRUEL DISEASE KNOWN TO MAN'; 1. The Eye of the Storm: Sandy's Story; 2. The Lucky One? The Sister's Story; 3. Lost and Found: The Older Son's Story; 4. 'Is Everyone All Right?' The Younger Son's Story; 5. EyesWide Open: The Daughter-in-law's Story; 6. Mopping the Ceiling: The Husband's Story; 7. A Cruel Inheritance: Brian's Story; 8. Tips for Living with Huntington's Disease; APPENDIX: USEFUL RESOURCES; REFERENCES; 330 $a'This is a moving true story of how people can find the inner strength to rise above it when their world is turned upside down.'. - Richard Branson. Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the su 606 $aHuntington's chorea$vBiography 606 $aHuntington's chorea$xPatients$xFamily relationships 608 $aElectronic books. 615 0$aHuntington's chorea 615 0$aHuntington's chorea$xPatients$xFamily relationships. 676 $a616.8/510092 676 $aB 700 $aSulaiman$b Sandy$f1959-$01043953 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910451274703321 996 $aLearning to live with Huntington's disease$92469267 997 $aUNINA