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100   $a20200716d2003      uy             0
101 0 $aeng
135   $aur|n|---|||||
181   $ctxt
182   $cc
183   $acr
200 00$aPopulations and Genetics $eLegal and Socio-Ethical Perspectives /$fedited by Bartha Maria Knoppers
210  1$aLeiden; $aBoston :$cBrill | Nijhoff,$d2003.
215   $a1 online resource (669 p.)
300   $aProceedings of the 3rd International DNA Sampling Conference held in Montreal, Que?bec, 2002.
311   $a90-04-13678-9 
320   $aIncludes bibliographical references and index.
327   $aAcknowledgements; In memoriam; Prologue; Contents; Section 1 - Of Biobanks and Databases; Section 2 - Of Populations and Communities; Section 3 - Of Commerce, Patents and Benefit-Sharing; Section 4 - Of Information and Discrimination; Epilogue - Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations
330   $aGenetic research and testing is not limited to individuals and their families. Increasingly, there is focus on communities and even whole populations. This raises legal and socio-ethical and issues that have not been addressed. In this age of international biobanking involving populations, are current legal and ethical approaches sufficient? This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns. Possible commercialization, patents, benefit sharing, discrimination, and the role of patient organizations and of developing countries are also discussed. New perspectives and models are provided. The book concludes with a Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations. Policymakers, academics, legislators and researchers will find this book to be current and controversial. The human genome may be mapped but the legal and socio-ethical debate is far from over.
517 3 $aLegal and Socio-Ethical Perspectives
606   $aBiological Specimen Banks$xethics
606   $aBiological Specimen Banks$xlegislation & jurisprudence
606   $aDatabases, Genetic$xethics
606   $aDatabases, Genetic$xlegislation & jurisprudence
606   $aDNA fingerprinting$xLaw and legislation$vCongresses
606   $aGenetics, Population$xethics
606   $aGenetics, Population$xlegislation & jurisprudence
606   $aHuman population genetics$xMoral and ethical aspects$vCongresses
606   $aMedical genetics$xLaw and legislation$vCongresses
608   $aElectronic books.
615  0$aBiological Specimen Banks$xethics.
615  0$aBiological Specimen Banks$xlegislation & jurisprudence.
615  0$aDatabases, Genetic$xethics.
615  0$aDatabases, Genetic$xlegislation & jurisprudence.
615  0$aDNA fingerprinting$xLaw and legislation
615  0$aGenetics, Population$xethics.
615  0$aGenetics, Population$xlegislation & jurisprudence.
615  0$aHuman population genetics$xMoral and ethical aspects
615  0$aMedical genetics$xLaw and legislation
676   $a344.04196
702   $aKnoppers$b Bartha Maria
712 12$aInternational DNA Sampling Conference
801  0$bNL-LeKB
801  1$bNL-LeKB
906   $aBOOK
912   $a9910449892803321
996   $aPopulations and Genetics$92487387
997   $aUNINA