LEADER 03329nam 2200589Ia 450 001 9910438237603321 005 20200520144314.0 010 $a1-299-33670-1 010 $a3-642-33116-5 024 7 $a10.1007/978-3-642-33116-9 035 $a(CKB)2670000000327992 035 $a(EBL)1082651 035 $a(OCoLC)827212427 035 $a(SSID)ssj0000878644 035 $a(PQKBManifestationID)11436035 035 $a(PQKBTitleCode)TC0000878644 035 $a(PQKBWorkID)10836449 035 $a(PQKB)10905258 035 $a(DE-He213)978-3-642-33116-9 035 $a(MiAaPQ)EBC1082651 035 $a(PPN)168323567 035 $a(EXLCZ)992670000000327992 100 $a20130208d2013 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 00$aComparative issues in the governance of research biobanks $eproperty, privacy, intellectual property, and the role of technology /$fGiovanni Pascuzzi, Umberto Izzo, Matteo Macilotti, editors 205 $a1st ed. 2013. 210 $aHeidelberg ;$aNew York $cSpringer$d2013 215 $a1 online resource (332 p.) 300 $aIncludes index. 311 $a3-642-43933-0 311 $a3-642-33115-7 327 $aFrom the contents: Property and Privacy in Biobanking -- Intellectual Property and Biobanks -- Biobanks: The Perspective of Biobanker's. 330 $aIn the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor?s ?informed consent? as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property. 606 $aBiobanks$xLaw and legislation 606 $aBiology$xResearch$xLaw and legislation 615 0$aBiobanks$xLaw and legislation. 615 0$aBiology$xResearch$xLaw and legislation. 676 $a344.4204194 701 $aPascuzzi$b Giovanni$0139612 701 $aIzzo$b Umberto$0300398 701 $aMacilotti$b Matteo$0479225 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910438237603321 996 $aComparative issues in the governance of research biobanks$94194072 997 $aUNINA