LEADER 03551nam 22004813a 450 001 9910346844703321 005 20250203235430.0 010 $a9783038973515 010 $a3038973513 024 8 $a10.3390/books978-3-03897-351-5 035 $a(CKB)4920000000095193 035 $a(oapen)https://directory.doabooks.org/handle/20.500.12854/55901 035 $a(ScCtBLL)8e5091dc-8e00-4cb9-97a8-a2268921e448 035 $a(OCoLC)1163838886 035 $a(oapen)doab55901 035 $a(EXLCZ)994920000000095193 100 $a20250203i20192019 uu 101 0 $aeng 135 $aurmn|---annan 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 00$aPediatric Palliative Care$fStefan J. Friedrichsdorf 210 $cMDPI - Multidisciplinary Digital Publishing Institute$d2019 210 1$aBasel, Switzerland :$cMDPI,$d2019. 215 $a1 electronic resource (252 p.) 311 08$a9783038973508 311 08$a3038973505 330 $aAt least 20 million children worldwide would benefit from Pediatric Palliative Care (PPC) annually, and eight million children would need specialized PPC services. In the USA alone, more than 42,000 children, 0-19 years, die annually; fifty-five percent of them are infants younger than one year old. Interdisciplinary PPC is about matching treatment to patient goals and is considered specialized medical care for children with a serious illness. It is focused on relieving pain, distressing symptoms, and stress from a serious illness and is appropriate at any age and at any stage, together with curative treatment. The primary PPC goal is to improve the quality of life both for the child and for his/her family.Sadly, advances in the control of symptoms in children dying of life-limiting diseases have often not kept pace with treatment directed at curing the underlying disease. Data reveal that the majority of distressing symptoms in children with an advanced serious illness (such as pain, dyspnea and nausea/vomiting) are not treated, and, when treated, therapy is commonly ineffective. Emerging evidence shows that palliative care involvement results in improved quality of life, as well as prolongation of life.High-quality pediatric palliative care for children with serious illnesses is now an expected standard of medical care. However, there still remain significant barriers to achieving optimal care, related to lack of formal education, reimbursement issues, the emotional impact of caring for a dying child, and most importantly, the lack of interdisciplinary PPC teams with sufficient staffing.Fortunately, considerable advances have been made in recent years providing PPC around the globe both in resource-poor and resource-rich countries through care provided at children's hospitals, outpatient palliative care clinics, palliative home care, and free-standing children's hospice houses. This book, authored by leading authorities in the field, is dedicated to describing existing gaps, as well as the achievements made in clinical care, education, training, and research. 606 $aMedicine$2bicssc 610 $asymptom management 610 $alife-limiting disease 610 $aquality of life 610 $ahospice 610 $apediatric palliative care 615 7$aMedicine 700 $aFriedrichsdorf$b Stefan J$01786629 801 0$bScCtBLL 801 1$bScCtBLL 906 $aBOOK 912 $a9910346844703321 996 $aPediatric Palliative Care$94318528 997 $aUNINA