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200 10$aLegalising Mitochondrial Donation $eEnacting Ethical Futures in UK Biomedical Politics /$fby Rebecca Dimond, Neil Stephens
205   $a1st ed. 2018.
210  1$aCham :$cSpringer International Publishing :$cImprint: Palgrave Pivot,$d2018.
215   $a1 online resource (149 pages)
311 08$a9783319746449 
311 08$a3319746448 
327   $a1. Mitochondrial donation and UK biomedical politics -- 2. Contesting mitochondrial donation: the cluster for -- 3. Contesting mitochondrial donation: the cluster against -- 4. Policy work and legitimacy at Nuffield Council on Bioethics, the Human Fertilisation and Embryology Authority, and the Department of Health -- 5. Campaigning: contested meanings, patient-families, and last minute labours -- 6. The parliamentary debates -- 7. Enacting ethical futures.
330   $aIn 2015 the UK became the first country in the world to legalise mitochondrial donation, a controversial germ line reproductive technology to prevent the transmission of mitochondrial disease. Dimond and Stephens track the intense period of scientific and ethical review, public consultation and parliamentary debates preceeding the decision. They draw on stakeholder accounts and public documents to explore how patients, professionals, institutions and publics mobilised within 'for' and 'against' clusters, engaging in extensive promissory, emotional, bureaucratic, ethical, embodied and clinical labour to justify competing visions of an ethical future. They describe how this decision is the latest iteration of a UK sociotechnical imaginary in which the further liberalization of human embryo research and use is rendered legitimate and ethical through modes of consultation and permissive but strictly regulated licensing. Overall, this book presents a timely, multi-dimensional, and sociological account of a globally significant landmark in the history of human genetics, and will be relevant to those with an interest in genetics, Science, Technology and Society, the sociology of medicine, reproductive technology, and public policy debate.
606   $aSocial medicine
606   $aBioethics
606   $aScience$xHistory
606   $aSocial policy
606   $aTechnology$xPhilosophy
606   $aMedical Sociology
606   $aBioethics
606   $aHistory of Science
606   $aSocial Policy
606   $aPhilosophy of Technology
615  0$aSocial medicine.
615  0$aBioethics.
615  0$aScience$xHistory.
615  0$aSocial policy.
615  0$aTechnology$xPhilosophy.
615 14$aMedical Sociology.
615 24$aBioethics.
615 24$aHistory of Science.
615 24$aSocial Policy.
615 24$aPhilosophy of Technology.
676   $a176
700   $aDimond$b Rebecca$4aut$4http://id.loc.gov/vocabulary/relators/aut$0902453
702   $aStephens$b Neil$4aut$4http://id.loc.gov/vocabulary/relators/aut
906   $aBOOK
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996   $aLegalising Mitochondrial Donation$92017415
997   $aUNINA