LEADER 04077nam 22007335 450 001 9910300212703321 005 20200701085456.0 010 $a3-319-17416-9 024 7 $a10.1007/978-3-319-17416-7 035 $a(CKB)3710000000434201 035 $a(EBL)2094720 035 $a(SSID)ssj0001524948 035 $a(PQKBManifestationID)11845561 035 $a(PQKBTitleCode)TC0001524948 035 $a(PQKBWorkID)11484209 035 $a(PQKB)11322315 035 $a(DE-He213)978-3-319-17416-7 035 $a(MiAaPQ)EBC2094720 035 $a(PPN)18639568X 035 $a(EXLCZ)993710000000434201 100 $a20150615d2015 u| 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aInformed Consent in Predictive Genetic Testing $eA Revised Model /$fby Jessica Minor 205 $a1st ed. 2015. 210 1$aCham :$cSpringer International Publishing :$cImprint: Springer,$d2015. 215 $a1 online resource (237 p.) 300 $aDescription based upon print version of record. 311 $a3-319-17415-0 320 $aIncludes bibliographical references and index. 327 $aIntroduction -- Predictive Genetic Testing -- The History and Components of Informed Consent -- Revised Model of Informed Consent -- Application of the Revised Model -- Conclusion. 330 $aThis important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource.   Included in the coverage:   The science behind PGT. Understanding genetic risks and probability. The history of informed consent. Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety. Applications of the model in DTC and pleiotropic genetic testing. Implementation of the revised model, and assessing its effectiveness.   A milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals. 606 $aMaternal and child health services 606 $aPsychotherapy 606 $aCounseling 606 $aHuman genetics 606 $aClinical health psychology 606 $aMaternal and Child Health$3https://scigraph.springernature.com/ontologies/product-market-codes/H27025 606 $aPsychotherapy and Counseling$3https://scigraph.springernature.com/ontologies/product-market-codes/Y12010 606 $aHuman Genetics$3https://scigraph.springernature.com/ontologies/product-market-codes/B12008 606 $aHealth Psychology$3https://scigraph.springernature.com/ontologies/product-market-codes/Y12020 615 0$aMaternal and child health services. 615 0$aPsychotherapy. 615 0$aCounseling. 615 0$aHuman genetics. 615 0$aClinical health psychology. 615 14$aMaternal and Child Health. 615 24$aPsychotherapy and Counseling. 615 24$aHuman Genetics. 615 24$aHealth Psychology. 676 $a599935 676 $a610 676 $a611.01816 676 $a613 676 $a616.89 676 $a616.8914 700 $aMinor$b Jessica$4aut$4http://id.loc.gov/vocabulary/relators/aut$0835186 906 $aBOOK 912 $a9910300212703321 996 $aInformed Consent in Predictive Genetic Testing$91866591 997 $aUNINA