LEADER 06851nam 22008055 450 001 9910253966903321 005 20251202121656.0 010 $a3-319-27690-5 024 7 $a10.1007/978-3-319-27690-8 035 $a(CKB)3150000000021334 035 $a(EBL)4418787 035 $a(SSID)ssj0001654014 035 $a(PQKBManifestationID)16434005 035 $a(PQKBTitleCode)TC0001654014 035 $a(PQKBWorkID)14982913 035 $a(PQKB)10272179 035 $a(DE-He213)978-3-319-27690-8 035 $a(MiAaPQ)EBC4418787 035 $a(PPN)192219944 035 $a(EXLCZ)993150000000021334 100 $a20160220d2016 u| 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aEthical Counselling and Medical Decision-Making in the Era of Personalised Medicine $eA Practice-Oriented Guide /$fedited by Giovanni Boniolo, Virginia Sanchini 205 $a1st ed. 2016. 210 1$aCham :$cSpringer International Publishing :$cImprint: Springer,$d2016. 215 $a1 online resource (129 p.) 225 1 $aSpringerBriefs on Ethical and Legal Issues in Biomedicine and Technology,$x2626-6709 300 $aDescription based upon print version of record. 311 08$a3-319-27688-3 320 $aIncludes bibliographical references at the end of each chapters. 327 $aContents; About the Book; The Plan; Part I Methodology; 1 Ethics Consultation Services: The Scenario; Abstract; 1 A Map; 2 Expectations; 2.1 Skills and Knowledge; 2.2 Service Provider's Role; 3 Approaches; 4 Our View; References; 2 Ethical Counselling for Patients; Abstract; 1 The Aristotelian Practical Philosophy; 2 The Methodology; 2.1 Relational Phase; 2.2 Medical Assessment Phase; 2.3 Ethical Analysis Phase; 2.3.1 Ethical Assessment Phase; 2.3.2 Ethical Comparative Phase; 2.3.3 Perspective Phase; 2.4 Wrap-up Phase; References; 3 Ethical Counselling for Physicians; Abstract 327 $a1 The Medieval Origin2 The Methodological Proposal; References; 4 Nocebo and the Patient--Physician Communication; Abstract; 1 Relation Between Clinical Communication and Nocebo Effects; 2 Mitigating Nocebo Effects Through Optimization of Patient--Clinician Communication; 3 Clinical Communication and Patients' Expectations; 4 Ethical Considerations; 5 Future Directions; References; 5 Reasons and Emotions; Abstract; 1 Emotions and Reason-Giving; 2 Why Reason-Giving Is Important in Dealing with Ethical Dilemmas; 3 Reason-Giving and the Making Explicit of Personal Philosophies 327 $a4 Reason-Giving as an Open-Ended ProcessReferences; 6 The Centrality of Probability; Abstract; 1 Probability and Tests; 1.1 Some Basic Hints; 1.2 The Probability of a Disease; 2 Probability and Survivorship; 3 What About Patients?; References; Part II Ethical Issues; 7 Genetic Testing and Reproductive Choices; Abstract; 1 Genetic Tests: A Brief Overview; 2 The Nature and Scope of Procreative Liberty; 3 Mapping the Ethics of Reproductive Choices; 3.1 The First Landmark: Same Number Versus Different Number Choices; 3.2 The Second Landmark: Considerations on the Quality of Life of the Child 327 $a3.3 The Third Landmark: The Principle of Procreative Beneficence and the Child's Right to an Open Future4 Conclusion; References; 8 The `Right-not-to-Know'; Abstract; 1 The Nature and Scope of One's `Right-not-to-Know'; 1.1 Autonomy and Its Conflict with the `Right-not-to-Know'; 1.2 The Externalities of the `Right-not-to-Know': A Revival of Paternalistic Medicine; 1.3 Third-Party Interests and the `Right-not-to-Know'; 2 The Legal Recognition of the `Right-not-to-Know'; 3 Is Julie and Philip's Choice not to Test the Twins Ethically Acceptable?; References; 9 Incidental Findings; Abstract 327 $a1 Incidental Findings2 Reporting of Incidental Findings in the Clinic; 3 Personalised Ethical Counselling and Incidental Findings; References; 10 Oncofertility; Abstract; 1 Fertility Preservation in Oncology; 2 Ethical Debate Surrounding Fertility and Cancer; 2.1 Arguments Supporting Fertility Preservation for Cancer Patients; 2.2 Arguments Objecting Fertility Preservation for Cancer Patients; 2.3 Considerations Concerning Future Fertility of Children Affected by Cancer; 2.4 Concerning Cancer Treatment During Pregnancy; 3 Personalising Ethical Counselling for Oncofertility Patients 327 $aReferences 330 $aThis book offers an overview of the main questions arising when biomedical decision-making intersects ethical decision-making. It reports on two ethical decision-making methodologies, one addressing the patients, the other physicians. It shows how patients? autonomous choices can be empowered by increasing awareness of ethical deliberation, and at the same time it supports healthcare professionals in developing an ethical sensitivity, which they can apply in their daily practice. The book highlights the importance and relevance of practicing bioethics in the age of personalized medicine. It presents concrete cases studies dealing with cancer and genetic diseases, where difficult decisions need to be made by all the parties involved: patients, physicians and families. Decisions concern not only diagnostic procedures and treatments, but also moral values, religious beliefs and ways of seeing life and death, thus adding further layers of complexity to biomedical decision-making. This book, which is strongly rooted in the philosophical tradition, features non-directive counseling and patient-centeredness. It provides a concise yet comprehensive and practice-oriented guide to decision-making in modern healthcare. 410 0$aSpringerBriefs on Ethical and Legal Issues in Biomedicine and Technology,$x2626-6709 606 $aBiomedical engineering 606 $aBioethics 606 $aEthics 606 $aMedicine$xResearch 606 $aBiology$xResearch 606 $aBiomedical Engineering and Bioengineering 606 $aBioethics 606 $aMoral Philosophy and Applied Ethics 606 $aBiomedical Research 615 0$aBiomedical engineering. 615 0$aBioethics. 615 0$aEthics. 615 0$aMedicine$xResearch. 615 0$aBiology$xResearch. 615 14$aBiomedical Engineering and Bioengineering. 615 24$aBioethics. 615 24$aMoral Philosophy and Applied Ethics. 615 24$aBiomedical Research. 676 $a174.91583 702 $aBoniolo$b Giovanni$4edt$4http://id.loc.gov/vocabulary/relators/edt 702 $aSanchini$b Virginia$4edt$4http://id.loc.gov/vocabulary/relators/edt 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910253966903321 996 $aEthical Counselling and Medical Decision-Making in the Era of Personalised Medicine$91544984 997 $aUNINA