LEADER 04287oam 2200649Mu 450 001 9910208842303321 005 20230621141133.0 010 $a0-203-10179-0 010 $a1-136-23700-3 010 $a1-136-23701-1 024 7 $a10.4324/9780203101797 035 $a(CKB)2550000001110535 035 $a(MiAaPQ)EBC1344547 035 $a(OCoLC)858861437 035 $a(OCoLC)1076650678 035 $a(OCoLC-P)1076650678 035 $a(FlBoTFG)9780203101797 035 $a(oapen)https://directory.doabooks.org/handle/20.500.12854/33606 035 $a(MiAaPQ)EBC7244914 035 $a(Au-PeEL)EBL7244914 035 $a(EXLCZ)992550000001110535 100 $a20140528d2013 uy 101 0 $aeng 135 $auuuuu---auuuu 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aNegotiating bioethics 210 $cRoutledge$d2013 215 $a1 online resource (xviii, 192 pages) $cdigital file(s) 225 1 $aGenetics and society 311 08$aPrint version: 0-415-53346-5 320 $aIncludes bibliographical references and index. 327 $a1. Introduction -- 2. Bioethics : human genetic and biomedical research ethics at UNESCO and beyond -- 3. Global governance : a conceptual framework for analysing bioethics at UNESCO -- 4. Deliberating bioethics : UNESCO's standard-setting activities -- 5. Implementing bioethics : UNESCO's efforts to realize and enforce the declarations -- 6. Contextualizing bioethics : the declarations in Kenya and South Africa -- 7. Contextualizing bioethics : mapping progress in Kenya and South Africa -- 8. Conclusion. 330 $aThe sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO's Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning. Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme - deliberation and implementation - at international and national levels, Langlois explores: - how relations between developed and developing countries can be made more equal - who should be involved in global level decision-making and how this should proceed - how overlap between initiatives can be avoided - what can be done to improve the implementation of international norms by sovereign states - how far universal norms can be contextualized - what impact the efficacy of national level governance has at international level Drawing on extensive empirical research, Negotiating Bioethics presents a truly global perspective on bioethics. 410 0$aGenetics and society. 606 $aBioethics$xInternational cooperation 606 $aMedical ethics$xInternational cooperation 606 $aMedical genetics$xLaw and legislation$xInternational cooperation 610 $aunesco's bioethics programm. 610 $abioethics. 610 $agenetics, medical. 610 $aprogram evaluation. 610 $aethics, medical. 610 $ainternational cooperation. 615 0$aBioethics$xInternational cooperation. 615 0$aMedical ethics$xInternational cooperation. 615 0$aMedical genetics$xLaw and legislation$xInternational cooperation. 676 $a174.2 686 $aPOL011000$aSCI010000$aSOC000000$2bisacsh 700 $aLanglois$b Adl?e$4aut$01240423 801 0$bOCoLC-P 801 1$bOCoLC-P 906 $aBOOK 912 $a9910208842303321 996 $aNegotiating bioethics$92877755 997 $aUNINA