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200 00$aWhen children die$b[electronic resource] $eimproving palliative and end-of-life care for children and their families /$fCommittee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors
210   $aWashington, D.C. $cNational Academy Press$dc2003
215   $a1 online resource (712 p.)
300   $aDescription based upon print version of record.
311   $a0-309-08437-7 
320   $aIncludes bibliographical references and index.
327   $a""Front Matter""; ""Contents""; ""Preface""; ""Acknowledgments""; ""Reviewers""; ""Summary""; ""Introduction""; ""Patterns of Childhood Death in America""; ""Pathways to a Childa???s Death""; ""Communication, Goal Setting, and Care Planning""; ""Care and Caring from Diagnosis Through Death and Bereavement""; ""Providing, Organizing, and Improving Care""; ""Financing of Palliative and End-of-Life Care for Children and Their Families""; ""Ethical and Legal Issues""; ""Educating Health Care Professionals""; ""Directions for Research""; ""References""; ""Appendix A Study Origins and Activities""
327   $a""Appendix B Prognostication Scores""""Appendix C Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents""; ""Appendix D Cultural Dimensions of Care at Lifea???s End for Children and Their Families""; ""Appendix E Bereavement Experiences after the Death of a Child""; ""Appendix F End-of-Life Care in Emergency Medical Services for Children""; ""Appendix G Education in Pediatric Palliative Care""; ""Appendix H Progress in Pediatric Palliative Care in New York Statea???A Demonstration Project""; ""Appendix I Committee Biographical Statements""; ""Index""
606   $aTerminally ill children$xCare
606   $aTerminally ill children$xFamily relationships
606   $aPalliative treatment
608   $aElectronic books.
615  0$aTerminally ill children$xCare.
615  0$aTerminally ill children$xFamily relationships.
615  0$aPalliative treatment.
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701   $aField$b Marilyn J$g(Marilyn Jane)$0855032
701   $aBehrman$b Richard E.$f1931-$0630342
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