04702nam 22008295 450 991101585580332120250731122937.03-031-93347-810.1007/978-3-031-93347-9(MiAaPQ)EBC32189519(Au-PeEL)EBL32189519(CKB)39567922600041(DE-He213)978-3-031-93347-9(EXLCZ)993956792260004120250702d2025 u| 0engurcnu||||||||txtrdacontentcrdamediacrrdacarrierHealthcare Delivery for Children with Medical Complexity The State of the Art and Future Directions /by Nancy Murphy, Justin C. Alvey, Jennifer Brinton, Natalie Heyrend Darro, Jason Fox, E. Avery Hill, Kathleen Irby, Andrew Robertson, Laura Smals-Murphy1st ed. 2025.Cham :Springer Nature Switzerland :Imprint: Springer,2025.1 online resource (158 pages)SpringerBriefs in Child Health,2625-28803-031-93346-X 1. Children with Medical Complexity: Who They Are and Why Caring for Them Matters -- 2. The Specialty and Scope of Complex Care Pediatrics -- 3. Community and Family Partnerships -- 4. Ethical Considerations in the Care of Children with Medical Complexity -- 5. Implications for Policy and Practice -- 6. Looking Ahead: Children with Medical Complexity and Public Health, Workforce Training, and Advocacy.This book describes the state of the art of pediatric complex care, sharing the authors' decades of experience in an academic health center to illustrate points. The authors are pediatric generalist and subspecialist providers, among others, who care for children with medical complexity in a Pediatric Complex Care program. Children with medical complexity (CMC) are a small yet impactful pediatric population, a subset of children with special healthcare needs that include multi-system, non-categorical, chronic conditions, high resource and technology dependencies, medical fragility, and functional impairments. CMC do not fit into traditional systems of care. They require the continuous collaboration of pediatric subspecialists, community and public health partners, and family caregivers. The field of Pediatric Complex Care is rapidly evolving, yet lacks a well-prepared workforce built on clear educational competencies and clinical guidelines. In this compact volume, the authors review models of care for CMC, and how these models intersect with larger public health systems, dependent on collaborative networks of community-based and family partnerships. They explore ethical considerations, including implications for policy and practice. Among the topics covered are: The Specialty and Scope of Complex Care Pediatrics Ethical Considerations in the Care of Children with Medical Complexity Implications for Policy and Practice Healthcare Delivery for Children with Medical Complexity: The State of the Art and Future Directions is an essential resource for all medical professionals who care for CMC, public policy makers, medical educators, healthcare leaders, and community partners and stakeholders.SpringerBriefs in Child Health,2625-2880Public healthPediatricsMedical policyMedical careMedical educationMedical ethicsPublic HealthPediatricsHealth PolicyHealth CareMedical EducationMedical EthicsPublic health.Pediatrics.Medical policy.Medical care.Medical education.Medical ethics.Public Health.Pediatrics.Health Policy.Health Care.Medical Education.Medical Ethics.613614Murphy Nancy1834044Alvey Justin C1834045Brinton Jennifer1834046Darro Natalie Heyrend1834047Fox Jason1680303Hill E. Avery1834048Irby Kathleen1834049Robertson Andrew173963Smals-Murphy Laura1834050Ames Stefanie1834051MiAaPQMiAaPQMiAaPQBOOK9911015855803321Healthcare Delivery for Children with Medical Complexity4409154UNINA