00899nam--2200349---450-99000314579020331620080917125744.0000314579USA01000314579(ALEPH)000314579USA0100031457920080917d1967----km-y0itay50------bagerDE||||||||001yyTandelkellerRomanHans J. FrohlichFrankfurt am MainInsel1967214 p.20 cm20012001001-------2001Letteratura tedescaNarrativa833FRÖHLICH,Hans J.602123ITsalbcISBD990003145790203316II.3.A.1133420 DSLLBKDSLLDSLL9020080917USA011257Tandelkeller1018719UNISA03229oam 2200469 450 991077998990332120190911112724.01-78326-306-7(OCoLC)855528107(MiFhGG)GVRL8RGZ(EXLCZ)99255000000110767720130604h20132013 uy 0engurun|---uuuuatxtccrGenetic privacy an evaluation of the ethical and legal landscape /edited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho, National University of Singapore, SingaporeLondon Imperial College Press2013London :Imperial College Press,[2013]�20131 online resource (xiii, 397 pages)Gale eBooksDescription based upon print version of record.1-78326-305-9 1-299-77085-1 Includes bibliographical references and index.The notion of genetic privacy / Calvin W.L. Ho and Terry S.H. Kaan -- Can data protection secure personal privacy? / Onora O'Neill -- Navigating the privacy complex of self, other, and relationality / Calvin W.L. Ho -- Privacy and biomedical research : a role-based approach / Anh Tuan Nuyen -- Socio-political discourses on genetic privacy in Japan / Kenji Matsui -- Genetic privacy : a challenge to genetic testing in China / Chunshui Wang -- Don't ask, don't tell : exploring the limits of genetic privacy in Singapore / Terry S.H. Kaan -- Privacy, rights, and biomedical data collections / Benjamin Capps -- Individual right vs. public interest : the role of the Islamic religious council of Singapore in bioethics consultation on genetic privacy / Nazirudin M. Nasir -- What - if anything - is special about "genetic privacy"? / Jacqueline J.L. Chin and Alastair V. Campbell -- Genetic privacy in the United States : genetic exceptionalism, GINA, and the future of genetic testing / Thomas H. Murray and Ross S. White -- The regulatory framework for protection of genetic privacy in Australia / Margaret Otlowski and Dianne Nicol -- Privacy matters in nicotine addiction / Yvette van der Eijk -- Human genomics and privacy / Oi Lian Kon.Privacy is an unwieldy concept that has eluded an essentialised definition despite its centrality and importance in the body of bioethics. The compilation presented in this volume represents continuing discussions on the theme of privacy in the context of genetic information. It is intended to present a wide range of expert opinion in which the notion of privacy is examined from many perspectives, in different contexts and imperatives, and in different societies, with the hope of advancing an understanding of privacy through the examination and critique of some of its evolving component concepGenetic disordersMedical ethicsGenetic disorders.Medical ethics.174.2/96042Kaan TerryHo W. CalvinMiFhGGMiFhGGBOOK9910779989903321Genetic privacy3861274UNINA04105nam 2200733 a 450 991096561870332120251017110054.09786612081873978030918494603091849409781282081871128208187X9780309525138030952513697805851493490585149348(CKB)110986584752440(EBL)3375728(SSID)ssj0000244468(PQKBManifestationID)11208836(PQKBTitleCode)TC0000244468(PQKBWorkID)10168718(PQKB)10137738(MiAaPQ)EBC3375728(Au-PeEL)EBL3375728(CaPaEBR)ebr10041148(CaONFJC)MIL208187(OCoLC)923258378(Perlego)4733990(DNLM)887608(BIP)48342329(EXLCZ)9911098658475244019990402d1998 uy 0engur|n|---|||||txtccrServing science and society in the new millennium /U.S. Department of Energy, National Research Council1st ed.Washington, D.C. National Academy Press19981 online resource (156 p.)Description based upon print version of record.9780309062497 0309062497 Includes bibliographical references.""Front Matter""; ""Preface""; ""Contents""; ""Welcome""; ""A Celebration of 50 Years of Health and Environmental Research""; ""The Biological and Environmental Research Program at 50""; ""Keynote Address: Impact of Biotechnology and Environmental Research on Science and Society in the 21st Century""; ""Part I Enabling Research for Science and Technology: Biotechnology""; ""Biotechnology and the Human Genome Project""; ""Part II Biotechnology for a Healthy Citizenry""; ""Biologic Imaging: From Mouse Genome to Human Disease""""Health-Effects Research at the Crossroads: Molecular-Based Tools for Biologic Dosimetry and Individual Susceptibility""""Part III Protecting the Environment""; ""Atmospheric Carbon Dioxide: Contemporary Budget, Historical Context, and Implications for the Future""; ""Restoring the Environment Via Bioremediation and Molecular Sciences: Prospects for Better Understanding and New Science-Based Solutions""; ""Science Policy and Society: Current Challenges, Future Priorities""; ""Part V Biological and Environmental Research Program Recognition Awards""A symposium titled "Serving Science and Society into the New Millennium: The Legacy and the Promise" was held at the National Academy of Sciences on May 21-22, 1997. Speakers and panelists discussed the accomplishments and future of DOE's Biological and Environmental Research (BER) program. They also discussed a variety of multidisciplinary research activities, such as developing advanced medical diagnostic tools and treatments for human disease; assessing the health effects of radiation; tracking the regional and global movement of energy-related pollutants, and establishing the first human genome program. At the end of the symposium, 13 scientists who have been associated with the BER program and who have made significant contributions to its advancements and progress were honored. The proceedings volume includes the presentations made at the symposium.MedicineResearchUnited StatesCongressesBiotechnologyResearchUnited StatesCongressesLife sciencesResearchUnited StatesCongressesMedicineResearchBiotechnologyResearchLife sciencesResearch610/.72073National Research Council (U.S.)MiAaPQMiAaPQMiAaPQBOOK9910965618703321Serving science and society in the new millennium4362971UNINA