03615nam 2200769 a 450 991096379060332120251017110134.09786612083570978030914137603091413709781282083578128208357097803091250000309125006(CKB)1000000000785688(OCoLC)311551818(CaPaEBR)ebrary10286189(SSID)ssj0000111114(PQKBManifestationID)11137777(PQKBTitleCode)TC0000111114(PQKBWorkID)10074960(PQKB)11082618(Au-PeEL)EBL3378462(CaPaEBR)ebr10286189(CaONFJC)MIL208357(OCoLC)923279883(MiAaPQ)EBC3378462(Perlego)4734456(DNLM)1494468(BIP)26705020(EXLCZ)99100000000078568820090126d2009 uy 0engurcn|||||||||txtccrBeyond the HIPAA privacy rule enhancing privacy, improving health through research /Sharyl J. Nass, Laura A. Levit, and Lawrence O. Gostin, editors ; Committee on Health Research and the Privacy of Health Information, the HIPAA Privacy Rule, Board on Health Sciences Policy, Board on Health Care Services1st ed.Washington, D.C. National Academies Pressc20091 online resource (334 p.)Bibliographic Level Mode of Issuance: Monograph9780309124997 0309124999 Includes bibliographical references.Introduction -- The value and importance of health information privacy -- The value, importance, and oversight of health research -- HIPAA, the privacy rule, and its application to health research -- Effect of the HIPAA privacy rule on health research -- A new framework for protecting privacy in health research.In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.Medical recordsAccess controlUnited StatesHealthResearchUnited StatesPrivacy, Right ofUnited StatesMedical recordsAccess controlHealthResearchPrivacy, Right of651.5/04261Nass Sharyl J857626Levit Laura A1810851Gostin Lawrence O(Lawrence Ogalthorpe)884710Institute of Medicine (U.S.).Committee on Health Research and the Privacy of Health Information, the HIPAA Privacy Rule.Institute of Medicine (U.S.).Board on Health Care Services.Institute of Medicine (U.S.).Board on Health Sciences Policy.MiAaPQMiAaPQMiAaPQBOOK9910963790603321Beyond the HIPAA privacy rule4363386UNINA