02457nam 22006011 450 991096351710332120241207110046.097814214044241421404427(CKB)3240000000065058(CaPaEBR)ebrary10790485(SSID)ssj0000606230(PQKBManifestationID)11973769(PQKBTitleCode)TC0000606230(PQKBWorkID)10580584(PQKB)10373600(MiAaPQ)EBC3318769(OCoLC)798295750(MdBmJHUP)muse1532(Au-PeEL)EBL3318769(CaPaEBR)ebr10790485(ODN)ODN0000718147(EXLCZ)99324000000006505820101124d2011 uy 0engurcnu||||||||txtccrThe bleeding disease hemophilia and the unintended consequences of medical progress /Stephen Pemberton1st ed.2011Baltimore :Johns Hopkins University Press,2011.1 online resource (398 p.) Bibliographic Level Mode of Issuance: Monograph1-4214-0115-0 Includes bibliographical references (pages 305-363) and index.Introduction : hemophilia as pathology of progress -- The emergence of the hemophilia concept -- The scientist, the bleeder, and the laboratory -- Vital factors in the making of a masculine world -- Normality within limits -- The hemophiliac's passport to freedom -- Autonomy and other imperatives of the health consumer -- The mismanagement of hemophilia and AIDS -- Conclusion : the governance of clinical progress in a global age.Ironically, transforming the hope of a normal life into a purchasable commodity for people with bleeding disorders made it all too easy to ignore the potential dangers of delivering greater health and autonomy to hemophilic boys and men.HemophiliaComplicationsHemophiliaUnited StatesHistoryHemophiliaComplications.HemophiliaHistory.616.1/572MED039000bisacshPemberton Stephen Gregory1819200MiAaPQMiAaPQMiAaPQBOOK9910963517103321The bleeding disease4379360UNINA