03362nam 2200745 a 450 991095784220332120240418062516.097866117337429781281733740128173374197818464273121846427312(CKB)1000000000552525(EBL)350331(OCoLC)291091399(SSID)ssj0000121109(PQKBManifestationID)11999426(PQKBTitleCode)TC0000121109(PQKBWorkID)10093095(PQKB)10643741(MiAaPQ)EBC350331(Au-PeEL)EBL350331(CaPaEBR)ebr10233830(CaONFJC)MIL173374(Perlego)951546(EXLCZ)99100000000055252520070607d2008 uy 0engur|n|---|||||txtccrChildren with complex and continuing health needs the experiences of children, families and care staff /Jaqui Hewitt-Taylor1st ed.London ;Philadelphia Jessica Kingsley Publishers20081 online resource (211 p.)Description based upon print version of record.9781849854023 1849854025 9781843105022 1843105020 Includes bibliographical references and indexes.Children with complex and continuing needs -- Being a child or young person with complex needs -- Being the parent of a child who has complex needs -- Premature babies -- Families whose children have complex needs -- Diagnosis -- Support -- Healthcare -- Education -- Society -- Working with children and families -- Conclusion.'This book draws on the experiences of a number of families to provide a valuable and deeply moving insight into what it means to raise a child with complex needs. It highlights both the joys and the challenges that families face. In doing so it raises important issues about how services in the UK are currently responding to children with complex needs and their families as well as pervasive disablist attitudes within society. This book will provide students and practitioners from a range of disciplines with a valuable window into families' lives and challenge them to reflect on how they are sChronically ill childrenCareChildren with disabilitiesCareChronically ill childrenRehabilitationChildren with disabilitiesRehabilitationChronically ill childrenFamily relationshipsChildren with disabilitiesFamily relationshipsChronically ill childrenCare.Children with disabilitiesCare.Chronically ill childrenRehabilitation.Children with disabilitiesRehabilitation.Chronically ill childrenFamily relationships.Children with disabilitiesFamily relationships.618.92Hewitt-Taylor Jaqui1609668MiAaPQMiAaPQMiAaPQBOOK9910957842203321Children with complex and continuing health needs4358496UNINA