04168nam 22006015 450 991095406500332120230126220314.09780226345192022634519X10.7208/9780226345192(CKB)3790000000534784(StDuBDS)EDZ0001816558(MiAaPQ)EBC4942174(DE-B1597)524548(OCoLC)1015215535(DE-B1597)9780226345192(Perlego)1852026(EXLCZ)99379000000053478420191022d2017 uy 0engur|||||||||||txtrdacontentstirdacontentcrdamediacrrdacarrierThe postgenomic condition ethics, justice, and knowledge after the genome /Jenny ReardonChicago :University of Chicago Press,[2017]©20171 online resource illustrations9780226510453 022651045X 9780226344553 022634455X Includes bibliographical references and index.Frontmatter --Contents --1. The Postgenomic Condition: An Introduction --2. The Information of Life or the Life of Information? --3. Inclusion: Can Genomics Be Antiracist? --4. Who Represents the Human Genome? What Is the Human Genome? --5. Genomics for the People or the Rise of the Machines? --6. Genomics for the 98 Percent? --7. The Genomic Open 2.0: The Public v. The Public --8. Life on Third: Knowledge and Justice after the Genome --Epilogue --Acknowledgments --Notes --Bibliography --IndexNow that we have sequenced the human genome, what does it mean? In The Postgenomic Condition, Jenny Reardon critically examines the decade after the Human Genome Project, and the fundamental questions about meaning, value and justice this landmark achievement left in its wake. Drawing on more than a decade of research-in molecular biology labs, commercial startups, governmental agencies, and civic spaces-Reardon demonstrates how the extensive efforts to transform genomics from high tech informatics practiced by a few to meaningful knowledge beneficial to all exposed the limits of long-cherished liberal modes of knowing and governing life. Those in the American South challenged the value of being included in genomics when no hospital served their community. Ethicists and lawyers charged with overseeing Scottish DNA and data questioned how to develop a system of ownership for these resources when their capacity to create things of value-new personalized treatments-remained largely unrealized. Molecular biologists who pioneered genomics asked whether their practices of thinking could survive the deluge of data produced by the growing power of sequencing machines. While the media is filled with grand visions of precision medicine, The Postgenomic Condition shares these actual challenges of the scientists, entrepreneurs, policy makers, bioethicists, lawyers, and patient advocates who sought to leverage liberal democratic practices to render genomic data a new source of meaning and value for interpreting and caring for life. It brings into rich empirical focus the resulting hard on-the-ground questions about how to know and live on a depleted but data-rich, interconnected yet fractured planet, where technoscience garners significant resources, but deeper questions of knowledge and justice urgently demand attention.Human genomeResearchUnited StatesHistoryGenomicsMoral and ethical aspectsGenomicsSocial aspectsSociogenomicsHuman genomeResearchHistory.GenomicsMoral and ethical aspects.GenomicsSocial aspects.Sociogenomics.611.01816CC 7264SEPArvkReardon Jenny1972-978191DE-B1597DE-B1597BOOK9910954065003321The postgenomic condition4355399UNINA