03684nam 2200613Ia 450 991082909580332120200520144314.00-292-74466-810.7560/744653(CKB)3170000000060196(EBL)3443672(SSID)ssj0001036509(PQKBManifestationID)11575438(PQKBTitleCode)TC0001036509(PQKBWorkID)11041870(PQKB)10505315(MiAaPQ)EBC3443672(OCoLC)841909727(MdBmJHUP)muse25091(Au-PeEL)EBL3443672(CaPaEBR)ebr10689946(DE-B1597)587263(DE-B1597)9780292744660(EXLCZ)99317000000006019620121024d2013 ub 0engur|n|---|||||txtccrLiving with lupus women and chronic illness in Ecuador /by Ann Miles1st ed.Austin University of Texas Press20131 online resource (205 p.)Louann Atkins Temple women & culture series ;book thirtyDescription based upon print version of record.0-292-74465-X Includes bibliographical references and index.""Contents""; ""Acknowledgments""; ""1. Introduction""; ""2. Cuenca, Lupus, and Chronic Illness""; ""3. Health Care in Ecuador""; ""4. Liminality""; ""5. Loss""; ""6. Suffering""; ""7. Transformation""; ""8. Living with Lupus""; ""Notes""; ""References""; ""Index""Once associated only with the wealthy and privileged in Latin America, lifelong illnesses are now emerging among a wider cross section of the population as an unfortunate consequence of growing urbanization and increased life expectancy. One of these diseases is the chronic autoimmune disorder lupus erythematosus. Difficult to diagnose and harder still to effectively manage, lupus challenges the very foundations of women’s lives, their real and imagined futures, and their carefully constructed gendered identities. While the illness is validated by medical science, it is poorly understood by women, their families, and their communities, which creates multiple tensions as women attempt to make sense of an unpredictable, expensive, and culturally suspect medically managed illness. Living with Lupus vividly chronicles the struggles of Ecuadorian women as they come to terms with the experience of debilitating chronic illness. Drawing on years of ethnographic research, Ann Miles sensitively portrays the experiences and stories of Ecuadorian women who suffer with the intractable and stigmatizing disease. She uses in-depth case histories, rich in ethnographic detail, to explore not only how chronic illness can tear at the seams of women’s precarious lives, but also how meanings are reconfigured when a biomedical illness category moves across a cultural landscape. One of the few books that deals with the meanings and experiences of chronic illness in the developing world, Living with Lupus contributes to our understanding of a significant global health transition.Louann Atkins Temple Women & Culture SeriesSystemic lupus erythematosusEcuadorWomenDiseasesEcuadorSystemic lupus erythematosusWomenDiseases362.1967/72009866Miles Ann(Ann M.)1604293MiAaPQMiAaPQMiAaPQBOOK9910829095803321Living with lupus3929068UNINA